Відео

Hey Julian, thanks for the comment, I can definitely relate. I agree that the difficulty with everyday tasks can be a little demoralising sometimes. In terms of coping with my body weakening, I definitely still have bad days. I've found that having some sort of outlet (for me it's wheelchair tennis) has allowed me to channel those feelings into something positive. I think acceptance (and humour) is really the only way to truly live with a condition like this, so it's nice to hear you've gotten to that stage. I'm still working my way there. I also really appreciate comments like yours, because it always reminds me (and others) that there are lots of people out there going through the exact same struggles. It can be quite comforting knowing you're not alone in all this. Stay well :)

coming soon! :)

hey! I'm sorry to hear you went through that, it's great to hear you're doing a bit better now. I'm definitely not a doctor but I feel that creatine is something worth trying out. It's helped me with energy and feeling a bit stronger. If you can, I'd recommend getting your bloodwork done before trying any supplements, to see if you have any deficiencies to start with. From there I'd look into other supplements if you're interested. With all this being said, I do think that diet plays more of a role than supplements (for me personally). I find that if I'm generally eating healthy I have more energy and supplements will only make a marginal difference (if any). I hope some of that helps :)

@dudeability 👍

@@dudeability If my kidney liver report in my blood test is normal then when should I do the next test or how much creatine do you take in a day or how much water do you drink?

Thanks Zoe! The MRI is super cool, I'm very keen to talk about it on the channel. I hope things are going well in your world :)

Thanks Leanne! I really appreciate your continued support. I'll be sure to make a video about the chair when I get it, I'm super excited! I hope you're well :)

In my opinion, creatine is the main thing that has made a noticeable difference for me (better energy/strength). I do take a bunch of other supplements for general health and recently I made a video on the supplements I'm taking for FSHD (there's a video on the channel about it). I'm definitely not qualified to give out medical advice but that video goes over some things that I'm trying. Appreciate the comment :)

@@dudeability please send me link bro and I found out taking Tramadol makes me lighter while exercising

thanks for the suggestion man I'll check it out. This is the video: ua-cam.com/video/sKYgpaoiAN0/v-deo.htmlsi=TZCcKR8yznFhD0nr

cheers nath, I'm super keen :)

thanks Georgey, I'm keen for you to see the MRI!

for this particular MRI, the FSHD Global Research Foundation generously covered the cost. It was part of their initiative to get Australian FSHD patients ready for clinical trials. The end result is a fully interactive 3D model of my muscles, which is a bit strange but super cool. It's unlike any scan I've seen before so I'm keen to show it! Injuries suck, I hope you're doing well :)

@@dudeability oh wow that's pretty awesome. I am!

thanks Scobes, we'll still have to get that hit in before then!

cheers nath, gotta eat big to get big

thanks Lou! very kind :)

Thanks Tony, It was a great night! I think you'd really enjoy it and I hope to be there too next year. I hope you and Pano are well and I'll see you sometime soon :)

Cheers Georgey, I'll have a look for the program!

Thanks Olib! I appreciate the continued support man, means a lot :))

thanks Scobes it was a super night. The choc went down VERY well

thanks Neil!

I would never! Appreciate the kind words Tdog :)

thanks Lou! it'll get a lot of use next season

It's really fun! (once it makes sense). I've never tried crochet, would you recommend?

@@dudeability Yes go for it! but you need different hooks :)

I shall add it to the list! :)

The colour changes are not as daunting as I expected, you got it! Happy knitting :)

Oo that looks really nice (and very doable), I’ll give it a try on my next project. Thanks for the suggestion!

that honestly means so much, thank you! I'll keep up the videos and I hope to see some of yours some day :)

I think after the initial frustration it starts to make sense! I'm sure you'd make a fine knitter :)

thanks tob! I'm keen to take it for a spin once it's actually finished aha

thanks for watching Riley, you should give it a crack!

thanks lisa!

I enjoyed it a lot more than I expected to, I'd love to see what you make!

cheers georgey, will have to finish it off this week!

haha learning to chop with your left would be great to watch, let's see it!

suspiciously so..

cheers georgey, very keen for them!

thanks Riley! nice to hear from you man

@@dudeability Haha no worries, cool to hear about your channel, nice production quality with the camera and thumbnails.

thank you Tony! That sounds like a blast, very much looking forward to it :)

Thanks Josh, that's really kind. That's really why I do all of this, to try to be the person I wished I could've looked up to when I first got diagnosed. In terms of getting on UA-cam/social media, I'd really just say go for it. I was extremely self-conscious initially when I put parts of myself up online, but those feelings quickly faded away. I'm sure the world would benefit from hearing what you have to say. All the best to you and your family :)

Thanks for the comment Scott! I'd love to catch up for a coffee, it'd be great to get your perspective on things. If you have Instagram you're welcome to message me there (@dudeability) or alternatively email me at kalvinhopperaus@gmail.com and we can get something going. :)

more than happy to help!

Hi Tony! Thanks for the kind words, really means a lot. UA-cam doesn't have a messaging feature but if you have instagram we could touch base there? My account is 'dudeability', I'd love to chat! Keen to hear from you :)

That's definitely a good point, hopefully soon!

Thanks Sandy, to be honest it feels like waaay longer than that haha

Thanks Scobes, I'll have to get some tips off you at some stage too

Cheers Nath, very kind. I appreciate all the comments you leave on the vids!

Ay thanks Matt, I really appreciate that you watched the entire vid. Keep grinding too brother :)

Thanks Marisa! I like to think that we're both making a real difference out there for folks with fshd :)

Can't thank you and Andrea enough Leanne, I had such a great time :)

thanks for listening georgey!