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Usher Syndrome India (USH India)
India
Приєднався 16 чер 2022
Usher syndrome is the most common genetic cause of combined hearing loss and vision loss. It is estimated to affect 56,000 to 280,000 people in India and 400,000+ worldwide as of 2022.
In 2008, the Usher Syndrome Coalition (www.usher-syndrome.org) was formed. It aims to identify and connect those living with Usher syndrome worldwide with researchers, with vital information, and with others affected by Usher syndrome. It has members in 74+ countries.
In 2020, the Coalition started Usher Syndrome India (USH India) to support the Usher community in India.
You are not alone!
Connect with the USH India Community:
Email: info.india@usher-syndrome.org
Facebook Page: groups/620209561981370
In 2008, the Usher Syndrome Coalition (www.usher-syndrome.org) was formed. It aims to identify and connect those living with Usher syndrome worldwide with researchers, with vital information, and with others affected by Usher syndrome. It has members in 74+ countries.
In 2020, the Coalition started Usher Syndrome India (USH India) to support the Usher community in India.
You are not alone!
Connect with the USH India Community:
Email: info.india@usher-syndrome.org
Facebook Page: groups/620209561981370
Torchit Products and Services for the DeafBlind | USH India Webinar
This video shows Hunny Bhagchandani’s presentation at the USH India Zoom Meeting on the 1st of December 2024.
BRIEF:
Usher syndrome is a genetic disorder that primarily begins with hearing loss, followed later by progressive vision loss due to Retinitis Pigmentosa (RP). The age at which RP symptoms appear can vary depending on the type of Usher syndrome, and the degree of vision impairment also differs from person to person. Over time, individuals with Usher syndrome often rely on a white cane and assistive technologies to maintain their independence.
In this session, Mr. Hunny Bhagchandani, the founder of Torchit (mytorchit.com/), provided insights into the affordable and innovative products Torchit offers to support individuals with Usher syndrome and the broader deafblind community. Topics included:
* Hunny's background and journey to founding Torchit
* How Torchit started and the company's mission
* Saarthi Smart Cane
* Jyoti AI Reader
* Jyoti AI Smart Glasses
* Product demos
* EnableMart online marketplace for products for PwDs (enablemart.in)
* Additional Torchit products designed to improve quality of life for the deafblind
* How can the Usher syndrome and Deafblind communities help in the development of new products
SOME KEY MESSAGES:
* Torchit offers affordable products at a fraction of the price of comparable products. For example, the Jyoti AI Pro (smart glasses + reader + ring) sells for INR 29,900 compared to Smart Vision Glasses (INR 35,000 for glasses only), Envision AI (INR 2,04,896 for glasses only), and OrCam My Eye 2 (INR 3,39,000 for glasses only).
* Torchit has incorporated braille functionality in some of their products. It has acquired the BrailleMe Refreshable Braille Device, to further enhance the braille functionality of its offerings.
* Torchit has established EnableMart, an online marketplace where customers can browse and buy products for the deafblind, hearing impaired, visually impaired, and other disabilities. They also sell some products via Amazon and other online retailers.
* Torchit has started to set up EnableMart Experience Centres Cum Sensitisation Centres across India, where customers can physically try products for PwDs, buy them, get usage training, etc. These centres are designed to be accessible to PwDs, and to be run by PwDs as micro entrepreneurs. Centres have been established/proposed for Ahmedabad, Jaipur, Chennai, Delhi, and Bangalore. Contact Torchit if you want an Experience Centre established in your area.
* Torchit has sold its products globally (eg. Asia, Africa, USA) through direct sales as well as partnerships with local organizations.
* Torchit says that If there are assistive devices available in other countries which you want to get in India, but are very expensive, contact Torchit. If there is demand, they can try to manufacture the products and sell them at an affordable cost.
* Suggestions for new products or how to enhance existing products for use by the deafblind are most welcome.
* Torchit websites: mytorchit.com, enablemart.in
[Disclaimer: While we share information on assistive technology that may be beneficial, the Usher Syndrome Coalition does not endorse nor promote any specific product.]
For our deaf low-vision viewers, this video shows ISL and ASL interpreters, and has English captions. For braille device users, the full transcript is available in
ushindia.blogspot.com/p/20241201-ush-india-meeting-transcript.html
For more information about Usher Syndrome and the Usher Syndrome Coalition:
Visit www.usher-syndrome.org
www.youtube.com/@UsherCoalition
To connect with the Usher Syndrome India (USH India) Community:
Email: info.india@usher-syndrome.org
USH India Blog: ushindia.blogspot.com
UA-cam Page: www.youtube.com/@ushersyndromeindia2020
Facebook Page: groups/ushersyndromeindia
BRIEF:
Usher syndrome is a genetic disorder that primarily begins with hearing loss, followed later by progressive vision loss due to Retinitis Pigmentosa (RP). The age at which RP symptoms appear can vary depending on the type of Usher syndrome, and the degree of vision impairment also differs from person to person. Over time, individuals with Usher syndrome often rely on a white cane and assistive technologies to maintain their independence.
In this session, Mr. Hunny Bhagchandani, the founder of Torchit (mytorchit.com/), provided insights into the affordable and innovative products Torchit offers to support individuals with Usher syndrome and the broader deafblind community. Topics included:
* Hunny's background and journey to founding Torchit
* How Torchit started and the company's mission
* Saarthi Smart Cane
* Jyoti AI Reader
* Jyoti AI Smart Glasses
* Product demos
* EnableMart online marketplace for products for PwDs (enablemart.in)
* Additional Torchit products designed to improve quality of life for the deafblind
* How can the Usher syndrome and Deafblind communities help in the development of new products
SOME KEY MESSAGES:
* Torchit offers affordable products at a fraction of the price of comparable products. For example, the Jyoti AI Pro (smart glasses + reader + ring) sells for INR 29,900 compared to Smart Vision Glasses (INR 35,000 for glasses only), Envision AI (INR 2,04,896 for glasses only), and OrCam My Eye 2 (INR 3,39,000 for glasses only).
* Torchit has incorporated braille functionality in some of their products. It has acquired the BrailleMe Refreshable Braille Device, to further enhance the braille functionality of its offerings.
* Torchit has established EnableMart, an online marketplace where customers can browse and buy products for the deafblind, hearing impaired, visually impaired, and other disabilities. They also sell some products via Amazon and other online retailers.
* Torchit has started to set up EnableMart Experience Centres Cum Sensitisation Centres across India, where customers can physically try products for PwDs, buy them, get usage training, etc. These centres are designed to be accessible to PwDs, and to be run by PwDs as micro entrepreneurs. Centres have been established/proposed for Ahmedabad, Jaipur, Chennai, Delhi, and Bangalore. Contact Torchit if you want an Experience Centre established in your area.
* Torchit has sold its products globally (eg. Asia, Africa, USA) through direct sales as well as partnerships with local organizations.
* Torchit says that If there are assistive devices available in other countries which you want to get in India, but are very expensive, contact Torchit. If there is demand, they can try to manufacture the products and sell them at an affordable cost.
* Suggestions for new products or how to enhance existing products for use by the deafblind are most welcome.
* Torchit websites: mytorchit.com, enablemart.in
[Disclaimer: While we share information on assistive technology that may be beneficial, the Usher Syndrome Coalition does not endorse nor promote any specific product.]
For our deaf low-vision viewers, this video shows ISL and ASL interpreters, and has English captions. For braille device users, the full transcript is available in
ushindia.blogspot.com/p/20241201-ush-india-meeting-transcript.html
For more information about Usher Syndrome and the Usher Syndrome Coalition:
Visit www.usher-syndrome.org
www.youtube.com/@UsherCoalition
To connect with the Usher Syndrome India (USH India) Community:
Email: info.india@usher-syndrome.org
USH India Blog: ushindia.blogspot.com
UA-cam Page: www.youtube.com/@ushersyndromeindia2020
Facebook Page: groups/ushersyndromeindia
Переглядів: 10
Відео
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Переглядів 692 місяці тому
This video shows Dr Sreekala’s presentation at the USH India Zoom Meeting on 14th July 2024. TOPIC: Ayurvedic Treatments Offered by Sreedhareeyam for Retinitis Pigmentosa, Usher Syndrome and Other Eye Conditions SPEAKER: Dr. Sreekala N.P. - Deputy Chief Physician and Medical Officer at Sreedhareeyam Hospital; Apex Body member of Sreedhareeyam Ayurvedic Research & Development Institute; Faculty ...
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Переглядів 255 місяців тому
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Переглядів 1510 місяців тому
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Переглядів 60Рік тому
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Переглядів 24Рік тому
In this video, Divya Goel welcomes the attendees to the first ever Usher Syndrome and Deafblind Families Meetup, held in Mumbai, last 2nd of April 2023. Divya's welcome remarks is followed by Geri Rosario's speech on the Usher Syndrome Coalition, the Coalition's goals, and the Coalition's India Chapter called Usher Syndrome India (or USH India). Geraldine (Geri) Rosario is one of the Ambassador...
20220604 Divya on Independent Living
Переглядів 26Рік тому
Divya has one of the rarest forms of Usher Syndrome, Usher 3B. Even though she is profoundly deaf and has low visioin, she loves to challenge herself to live independently and enjoy life. In this video, she shows her capabilities, talents, and cooking skills, and how she enjoys her life.
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Переглядів 85Рік тому
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Переглядів 33Рік тому
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Переглядів 97Рік тому
This video shows Divya Goel's main speech during the Usher Syndrome and Deafblind Families Meetup, held in Mumbai India, last 2nd April 2023. Divya talked about self-determination and self-advocacy, and about her journey as a deafblind person with Usher Syndrome. The video shows Divya using ASL sign language, with an ISL interpreter beside her, and another interpreter voicing in English. Englis...
Very much looking forward to hear your story so I will see you soon with deafblind gruop as an interpreter . I am Deaf person . Thank you ❤