Tigerlily Foundation
Tigerlily Foundation
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Prescription Drug Affordability Boards (PDABs) Patient Impacts
Learn about Prescription Drug Affordability Boards (PDABs) and how you as an advocate can meaningfully engage in them to ensure patients are receiving their intended benefits.
PDABs are state government-appointed boards that have the authority to review prescription drug costs and determine if they present an affordability challenge for patients. These boards are formed by policymakers and do not include patient, provider, or caregiver representatives who experience the real-world impact of treatments but can use tools to implement pricing restrictions that can actually hinder access to treatments for patients.
Learn more here: heal.tigerlilyfoundation.org/state-prescription-drug-affordability-boards/
Переглядів: 58

Відео

Empowering Change - Maimah Karmo (Preview)
Переглядів 28Місяць тому
Dr. Tania Small, SVP of Global Medical Affairs, and Maimah Karmo, Founder & CEO of the Tigerlily Foundation, come together for an inspiring conversation on empowering individuals to find their voice and advocate for better care in underserved communities.
Empowering Change - Dr. Tania Small (Preview)
Переглядів 44Місяць тому
Dr. Tania Small, SVP of Global Medical Affairs, and Maimah Karmo, Founder & CEO of the Tigerlily Foundation, come together for an inspiring conversation on empowering individuals to find their voice and advocate for better care in underserved communities.
Empowering Change
Переглядів 109Місяць тому
Dr. Tania Small, SVP of Global Medical Affairs, and Maimah Karmo, Founder & CEO of the Tigerlily Foundation, come together for an inspiring conversation on empowering individuals to find their voice and advocate for better care in underserved communities.
Tigerlily EmPOWER Ball 2023
Переглядів 1202 місяці тому
The 2023 EmPOWER Ball was a celebration of patients, providers, and supporters as we raised funds for programs that support young women before, during, and after cancer, with the goal of ending disparities within our lifetime. It was an evening of glamour and commemoration, honoring those who demonstrate inspiration, courage, and hope, and sharing their unique stories as trailblazers and leader...
In Order To Gain Trust We Must Be Trustworthy
Переглядів 852 місяці тому
The baseline standard needs to include adequate representation of Patients of Color in clinical trials. Neha and her team are committed to providing education, building trust and working with community and advocacy organizations like Tigerlily Foundation. Neha Director, Global Clinical Trial Diversity, Equity, & Inclusion at Seagen sees a place where curating to what the patients needs are and ...
3 Things We Can Do To Change Outcomes for Black and Brown Women With Cancer
Переглядів 242 місяці тому
BEACON Panelist and ANGEL Advocate Jazmine sees a world where there is no such thing as “social determinant of health”. #BEACONSymposium #TLFcares #TLFANGEL #HealthEquity #Cancersurvivor #healthdisparities #healthequity #breastcancer #cancerawareness #YoungAdultCancer #policy #health #publicpolicy #community #change #healthinsurance #insurancepolicy
3 Things We Can Do To Change Outcomes for Black and Brown Women With Cancer
Переглядів 253 місяці тому
3 Things We Can Do To Change Outcomes for Black and Brown Women With Cancer
Guidance, Growth, & Fear While Being Fearless | BREATHE Tv Season 4 Episode #11
Переглядів 464 місяці тому
Guidance, Growth, & Fear While Being Fearless | BREATHE Tv Season 4 Episode #11
Tigerlily BEACON Symposium
Переглядів 1124 місяці тому
Tigerlily BEACON Symposium
Mental Health, Mindset, and intention when living with cancer | BREATHE Tv Season 4 Episode #10
Переглядів 604 місяці тому
Mental Health, Mindset, and intention when living with cancer | BREATHE Tv Season 4 Episode #10
Uncovering TNBC featuring Jazmine Lampkin | BREATHE Tv Season 4 Episode #9
Переглядів 1275 місяців тому
Uncovering TNBC featuring Jazmine Lampkin | BREATHE Tv Season 4 Episode #9
#PullUpASeat April 2024: Her2+
Переглядів 785 місяців тому
#PullUpASeat April 2024: Her2
Recipient of Courage Award: Kawana Rucker | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 566 місяців тому
Recipient of Courage Award: Kawana Rucker | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: BMSF | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 66 місяців тому
Recipient of Transformation Award: BMSF | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Amgen | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 36 місяців тому
Recipient of Transformation Award: Amgen | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Gilead | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 66 місяців тому
Recipient of Transformation Award: Gilead | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Pfizer | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 56 місяців тому
Recipient of Transformation Award: Pfizer | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Seagen | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 46 місяців тому
Recipient of Transformation Award: Seagen | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Daiichi Sankyo | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 66 місяців тому
Recipient of Transformation Award: Daiichi Sankyo | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Transformation Award: Merck | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 36 місяців тому
Recipient of Transformation Award: Merck | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Trailblazer Award: Robert A. Winn, MD, VCU Massey Cancer Center | EmPOWER Ball 2023
Переглядів 296 місяців тому
Recipient of Trailblazer Award: Robert A. Winn, MD, VCU Massey Cancer Center | EmPOWER Ball 2023
Recipient of Maverick Award: Tania Small | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 186 місяців тому
Recipient of Maverick Award: Tania Small | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Hope Award: Dr. Paris Thomas | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 486 місяців тому
Recipient of Hope Award: Dr. Paris Thomas | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Hope Award: Paige Moore | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 56 місяців тому
Recipient of Hope Award: Paige Moore | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Hope Award: Lisa Simms Booth | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 176 місяців тому
Recipient of Hope Award: Lisa Simms Booth | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of KM Warrior Award: Shonte Drakeford | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 216 місяців тому
Recipient of KM Warrior Award: Shonte Drakeford | Tigerlily Foundation's EmPOWER Ball 2023
Recipient of Inspire Award: Keisha Stephney | Tigerlily Foundation's EmPOWER Ball 2023
Переглядів 96 місяців тому
Recipient of Inspire Award: Keisha Stephney | Tigerlily Foundation's EmPOWER Ball 2023
Recovery and Discovery: Finding a Pathway to Heal From Your Scars | BREATHE Tv Season 4 Episode #8
Переглядів 596 місяців тому
Recovery and Discovery: Finding a Pathway to Heal From Your Scars | BREATHE Tv Season 4 Episode #8
Tigerlily BEACON Symposium 2023
Переглядів 456 місяців тому
Tigerlily BEACON Symposium 2023

КОМЕНТАРІ

  • @LifeOfJimbo
    @LifeOfJimbo 6 днів тому

    Back in September of 2008, my godmother was diagnosed with breast cancer at the age of 42, she died just nine months later in June 2009. Because of this it amazes me how some women are able to live for decades with the disease. My godmother seemed well in herself for many months until her last two weeks where she rapidly declined

  • @Ryder-h7v
    @Ryder-h7v 23 дні тому

    My mom has cancer 😭🙁😭😭😭😭😭😞😭😭😭😞😑😩

  • @perseveranceofkeisha8792
    @perseveranceofkeisha8792 27 днів тому

    🫂❤️‍🩹❤️ Strong warrior Queen. God has been right there by your side the whole entire time. I give him glory for your life. Thank you God for doctors, medication & technology behind it all, thank you Father.

  • @evadethefae
    @evadethefae 29 днів тому

    The hope this filled me with. Recently diagnosed stage 4 with mets all over as well 🩷

  • @yos4257
    @yos4257 Місяць тому

    God bless u!

  • @premilabenjamin4444
    @premilabenjamin4444 Місяць тому

    Praise the LORD GOD ALMIGHTY FATHER in the mighty name of JESUS CHRIST. He is the LORD GOD our HEALER. JESUS CHRIST himself took our infirmities and bore all our sicknesses. With His stripes we are healed. The Prayer of faith will heal the sick'.

  • @vlogwithsoha2960
    @vlogwithsoha2960 Місяць тому

    mam,,r u fine now???pls,,tell me

  • @TaniaNSmall
    @TaniaNSmall Місяць тому

    Excited for what’s to come this year!!!!

  • @Larisa_Baker
    @Larisa_Baker 2 місяці тому

    ❤ sending you love and strenght, you are amazing!

  • @MariaCosta-qf7ot
    @MariaCosta-qf7ot 3 місяці тому

    Thank you so much for your story. I'm so inspired. I was just informed by my oncologist that I have a recurrence of cancer after 2 1/2 years. Today, hearing your words, I am heartened and strengthened. Peace be with you.

  • @xenthoughtbrandceo
    @xenthoughtbrandceo 3 місяці тому

    Praise God

  • @Exodus26.13Pi
    @Exodus26.13Pi 3 місяці тому

    38% Black abortion rate, 78% unwed mothers and 82% overweight mostly obese. Blame white woman Margaret Sanger's THE NEGR0 PROJECT from 1939.

  • @ShinyKoma
    @ShinyKoma 3 місяці тому

    Interesting fact: Catherine Odderstol is related to the winner of American Idol Season 17, Laine Hardy. Her mother, Sue Odderstol, is the sister of Hardy's mother which makes Catherine and Laine cousins... and it makes Catherine, like Laine, of Korean descent, hence the exotic look. What a small world...

  • @tweettweet7241
    @tweettweet7241 3 місяці тому

    May God continue to bless you and your family

  • @tomhoward9142
    @tomhoward9142 3 місяці тому

    Praying for everyone in this situation. 🙏🙏🙏🙏

  • @h3150
    @h3150 4 місяці тому

    She’s beautiful..

  • @thislittleshedofmine
    @thislittleshedofmine 4 місяці тому

    Thank you for sharing your story Kawana!!! For speaking up and out... Be a brave voice helping to pull others up to LIVE!!! ❤❤❤

  • @thislittleshedofmine
    @thislittleshedofmine 4 місяці тому

    Wow... Brittany you are a true warrior!!! 💪🏽❤️⚔️🛡👏🏽🤗 I cried tears of JOY, Sadness, and Hope watching this. Thanks so much for sharing and being a breath of fresh air, fighter, and encouragement at such a young age for so many of us!!! Your story is helping so many... I'm on my 6 round of Chemo and you have surely given me the inspiration to embrace it with LOVE ❤🙏🏽❤️ Prayers for you throughout this journey and continue your life legacy; you are truly making a difference!!! ❣️

  • @luciusjohnson384
    @luciusjohnson384 4 місяці тому

    I pray they can do something for my mom to at least let her love a bit longer she is so sick but I’m trying to keep her at home as long as k can and hope she starts treatment soon

  • @jazminelampkin6627
    @jazminelampkin6627 4 місяці тому

    This is GOOODDDD 👏🏽

  • @Veronica-kp1xj
    @Veronica-kp1xj 4 місяці тому

    Bless your heart I had it to💖🌹 may God bless you with a long life

  • @haileykrueger1895
    @haileykrueger1895 4 місяці тому

    One day My breast began swell and was tender to touch. I identified a lump under my nipple and called doc. The doctor then found 3 more lumps that I didn’t know were there. I have my mammogram and ultrasound this week pray for me

  • @haileykrueger1895
    @haileykrueger1895 4 місяці тому

    God makes the most beautiful place in heaven for those who have struggled on earth ❤️ keep fighting

  • @iriafriconnet4763
    @iriafriconnet4763 4 місяці тому

    Breath and Boundaries thank you

  • @luciusjohnson384
    @luciusjohnson384 4 місяці тому

    you all are so wonderful i needed this today mom has been diagnosed with MBC and she is scared and i told her many women are living their lives with this and technology is getter better day by day you ladies rock!

  • @yos4257
    @yos4257 5 місяців тому

    Gos bless you mama. I hope your doing much better. Love this video so inspiring

  • @pippenlapue9643
    @pippenlapue9643 5 місяців тому

    I just lost my daughter of 37 on mothers day to cancer 2024. She was a fighter. Like your daughter she was tiny. When she was a little girl she named herself Tigerlily. Seeing this video has help me. Thank you

    • @beth6288
      @beth6288 4 місяці тому

      May Tigerlily fly high with the angles 🙏🕊much peace and love to you Mama ✌❤🌹

  • @brianmurray9405
    @brianmurray9405 5 місяців тому

    Inspired by you ❤wow

  • @Geeta-zz9us
    @Geeta-zz9us 5 місяців тому

    Are you still alive, i have metastatic breast cancer stage 1, but I am afraid.

  • @roscosart1888
    @roscosart1888 5 місяців тому

    ❤🙏

  • @luciusjohnson384
    @luciusjohnson384 5 місяців тому

    Your a warrior!!!

  • @naththomas9946
    @naththomas9946 5 місяців тому

    Thank you, for the informative medical advice.

  • @reginafarmer4600
    @reginafarmer4600 6 місяців тому

    Js, I'm Mexican and native American but I look white and have never been offered a clinical trial, and I've been in and out of the hospital all my life, actually have just recently been diagnosed with something that's no cure to, and no help for it, there is an expectation of 5-9 years, it's been 5 years of diagnosis already, and well I can honestly feel it, I am 27 years old, have zero health coverage, and cannot work, as well as applied for disability multiple times and denied bc of my age, as well as the judge was the harshest and oldest judge in America, he denies cancer patients on their death bed, which is absolutely sad.

  • @nolamommy
    @nolamommy 6 місяців тому

    Rest in paradise Kuwana 🙏🏾

  • @CDauph25
    @CDauph25 6 місяців тому

    🙏🏽👏🏽💕

  • @Cheri-USA
    @Cheri-USA 6 місяців тому

    I’ve watched this video so many times. I hope I can do something to honor my son. He’s barely hanging on.

  • @neldacuellar1757
    @neldacuellar1757 6 місяців тому

    ❤Blessings

  • @deborahbizzell1989
    @deborahbizzell1989 6 місяців тому

    My Dr.told me too,that this time they don't recommend chemo.Without a real explanation.

  • @iderathaknotsay3624
    @iderathaknotsay3624 6 місяців тому

    You look stunning.. please continue to share your testimony. Thank you.

  • @tonyleach9805
    @tonyleach9805 6 місяців тому

    God bless you! You’re an inspiration my dear and may your journey continue with peace love and happiness

  • @JENELYNINTIGRO
    @JENELYNINTIGRO 6 місяців тому

    You are an inspiration to me❤

  • @jennyeykamp3905
    @jennyeykamp3905 6 місяців тому

    WOW !! That's all I can say at the moment about this wonderful young fighter.

  • @Priestobalar
    @Priestobalar 6 місяців тому

    I literally googled prayers for Hs and your UA-cam channel pooped up. (Dr OBALAR ). I had the believed for a total healing, after ordering your medication, I tested Negative after just one week of usage. This is a great testimony l'll keep sharing all the days of my life. If the world has more people like you, it will be a better place. God bless you Dr OBALAR, keep saving lives

  • @Priestobalar
    @Priestobalar 6 місяців тому

    I literally googled prayers for Hs and your UA-cam channel pooped up. (Dr OBALAR ). I had the believed for a total healing, after ordering your medication, I tested Negative after just one week of usage. This is a great testimony l'll keep sharing all the days of my life. If the world has more people like you, it will be a better place. God bless you Dr OBALAR, keep saving lives

  • @brandimbolu3190
    @brandimbolu3190 7 місяців тому

    Thank you, Tameka! This community is BLESSED to have you 🩷💕

  • @ecoquilting7077
    @ecoquilting7077 7 місяців тому

    Spotting and pain well after menopause could equal uterine cancer, as I found out, thanks to heading to Planned Parenthood. They had me biopsied, diagnosed, and referred to surgical before I could even get an appointment with my PCP! Amazing....

  • @marlenegold280
    @marlenegold280 7 місяців тому

    Muscle pain usually doesn’t cause bleeding; a tumour will.

  • @Eliza-xd5ck
    @Eliza-xd5ck 7 місяців тому

    You CANNOT perform ANY activity on even a 9/10 pain. Here is the scale, everyone should know it! 0 - Pain Free 1 - Pain is very mild, barely noticeable. Most of the time you don’t think about it. 2 - Minor pain. Annoying and may have occasional stronger twinges. 3 - Pain is noticeable and distracting, however, you can get used to it and adapt. 4 - Moderate pain. If you are deeply involved in an activity, it can be ignored for a period of time, but is still distracting. 5 - Moderately strong pain. It can’t be ignored for more than a few minutes, but with effort you still can manage to work or participate in some social activities. 6 - Moderately strong pain that interferes with normal daily activities. Difficulty concentrating. 7 - Severe pain that dominates your senses and significantly limits your ability to perform normal daily activities or maintain social relationships. Interferes with sleep. 8 - Intense pain. Physical activity is severely limited. Conversing requires great effort. 9 - Excruciating pain. Unable to converse. Crying out and/or moaning uncontrollably. 10 - Unspeakable pain. Bedridden and possibly delirious. Very few people will ever experience this level of pain.

  • @MoulderingMortal
    @MoulderingMortal 7 місяців тому

    Its terribly sad the pain of women/afab people has been downplayed and ignored for so long, she kept going through that extreme pain. We are trained since childhood to hold in our pain and aren't treated properly for it, yet a man could pull a muscle and be babied in the er like his leg dropped off.

  • @junoantaresofficial
    @junoantaresofficial 7 місяців тому

    I had a tumor in my tibia that was liquifying the bone, i was literally walking on eggshell thin bone for months thinking i have itilioband syndrome. Guys, its fine to have a suspected diagnosis from your own reseaech, but please take those theories and go to a doctor. It took five minutes for the correct speciallist to diagnose the problem and get me a referral to a cancer institute.

    • @thaloblue
      @thaloblue 7 місяців тому

      Are you better now?