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MLDA Official
Приєднався 25 лют 2014
About
MLDA first priority now is to save 13 LSD patients that are awaiting ERT treatment. LSD is life threatening diseases, without treatment the patients are dying..
Company Overview
Donations can be made via: Cheque to "Pertubuhan Penyakit Lisosomal Malaysia" and mail it to 1520, Jalan Berlian 5, Taman Bukit Kaya, 70200 Seremban, NS, Malaysia OR Bank transfer to: "Pertubuhan Penyakit Lisosomal Malaysia" Public Bank Acct: 3169692035
Description
Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization set up by a group of parents. It is to advocate for patients' right and educate general pubilc about various life threatening lysosomal storage diseases (LSD).
MLDA first priority now is to save 13 LSD patients that are awaiting ERT treatment. LSD is life threatening diseases, without treatment the patients are dying..
Company Overview
Donations can be made via: Cheque to "Pertubuhan Penyakit Lisosomal Malaysia" and mail it to 1520, Jalan Berlian 5, Taman Bukit Kaya, 70200 Seremban, NS, Malaysia OR Bank transfer to: "Pertubuhan Penyakit Lisosomal Malaysia" Public Bank Acct: 3169692035
Description
Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization set up by a group of parents. It is to advocate for patients' right and educate general pubilc about various life threatening lysosomal storage diseases (LSD).
Fusion Wayang Kulit: Facing the Darkest Fears, Seeking Hope Amidst the Shadows
Unveiling the Hidden Struggles of Parents
Journey through a powerful Wayang Kulit performance that portrays the unseen emotional battles faced by parents raising children with rare diseases. Witness how constant worry and fear cast a shadow on their daily lives, symbolized by the "evil character." This performance sheds light on the immense strength and resilience of these parents, who persevere despite the immense emotional challenges they face.
We invite you to join us in spreading awareness by sharing this video on social media.
If you would like to do a bank in cash or cheque donation, please make it to the following account
Public Bank 3169692035 to Pertubuhan Penyakit Lisosomal Malaysia
Then, please email your particulars to donation@mymlda.com. Please include your:
Name
IC Number
Mailing Address
Contact Number
Email Address
Donation via which bank
Date & Time
Donation Amount
Transaction Reference Number
If possible, please also send us a scanned copy of the transaction slip.
#WorldRareDiseaseDay #MLDA #ColorsOfRD #WayangKulitXRD #HopeForRareDiseases #NoOneLeftBehind #ShareYourColors #RareisMany #RareisStrong #RareisProud
Journey through a powerful Wayang Kulit performance that portrays the unseen emotional battles faced by parents raising children with rare diseases. Witness how constant worry and fear cast a shadow on their daily lives, symbolized by the "evil character." This performance sheds light on the immense strength and resilience of these parents, who persevere despite the immense emotional challenges they face.
We invite you to join us in spreading awareness by sharing this video on social media.
If you would like to do a bank in cash or cheque donation, please make it to the following account
Public Bank 3169692035 to Pertubuhan Penyakit Lisosomal Malaysia
Then, please email your particulars to donation@mymlda.com. Please include your:
Name
IC Number
Mailing Address
Contact Number
Email Address
Donation via which bank
Date & Time
Donation Amount
Transaction Reference Number
If possible, please also send us a scanned copy of the transaction slip.
#WorldRareDiseaseDay #MLDA #ColorsOfRD #WayangKulitXRD #HopeForRareDiseases #NoOneLeftBehind #ShareYourColors #RareisMany #RareisStrong #RareisProud
Переглядів: 147
Відео
Fusion Wayang Kulit: Battling Tiredness and Weakness in the Fight
Переглядів 1356 місяців тому
Yearning for Connection: A Wayang Kulit Story Experience a touching Wayang Kulit performance exploring the story of a young boy longing for friendship. Witness his struggle with loneliness and the challenges he faces due to a rare disease. This performance sheds light on the importance of inclusion, understanding, and creating safe spaces for all children to connect and play. We invite you to j...
Fusion Wayang Kulit: Patients Shunned by Society
Переглядів 696 місяців тому
Stand with us for inclusion! Join us for a special Wayang Kulit performance highlighting the story of a young girl facing challenges due to a rare disease. Witness her journey of resilience as she navigates social isolation and exclusion at school. This performance sheds light on the importance of empathy, understanding, and creating inclusive environments for all. We invite you to join us in s...
The Unseen Battle, Fusion Wayang Kulit Tales of Rare Resilience
Переглядів 4006 місяців тому
Today is the IIUM MY1200 cycling event in Malaysia! Organized by the International Islamic University Malaysia (IIUM) & Malaysia Lysosomal Diseases Association(MLDA), this is a prestigious long-distance cycling challenge that has gained recognition both nationally and internationally. This event has a rich history, showcasing the blend of sportsmanship, endurance, and the promotion of a healthy...
Fusion Wayang Kulit: Long, Heart-breaking Quest for the Diagnosis
Переглядів 4196 місяців тому
Today is the IIUM MY1200 cycling event in Malaysia! Organized by the International Islamic University Malaysia (IIUM) & Malaysia Lysosomal Diseases Association(MLDA), this is a prestigious long-distance cycling challenge that has gained recognition both nationally and internationally. This event has a rich history, showcasing the blend of sportsmanship, endurance, and the promotion of a healthy...
Paris-Brest-Paris 2023 Mission: Ride with Hope
Переглядів 60411 місяців тому
Welcome to this special video dedicated to the supporters of Malaysia Lysosomal Storage Diseases (MLDA). We extend our heartfelt gratitude to both corporate entities and individuals who have joined hands with us in making our 2023 Paris-Brest-Paris Campaign a reality. 'Ride With Hope' is a continuous awareness campaign designed to shed light on the challenges posed by Lysosomal Storage Diseases...
On You Depend, Their Tomorrow - MLDA Documentary
Переглядів 179Рік тому
On behalf of the MLDA family members, we extend our heartfelt gratitude to the talented students of IACT College for their remarkable masterpiece, the documentary, as their final year project. Their creation beautifully captures and portrays our family's extraordinary journey over the past 12 years. We believe that this impactful video will play a crucial role in raising awareness about our exp...
Ride With Hope ~ Miku Challenge
Переглядів 3692 роки тому
The inaugural Ride With Hope - Miku Challenge 2022 concluded successfully in an event that was participated by close to 600 participants and rare diseases (RD) patients while raising RM100,000 for Tabung Amanah Penyakit Jarang Jumpa Malaysia in Rembau, Negeri Sembilan today. Organised in collaboration with Malaysia Lysosomal Diseases Association (MLDA), Malaysian Rare Disorders Society (MRDS), ...
Besok Masih ada Sinar Harapan - Izz Daniyal
Переглядів 1872 роки тому
The first video for Daniyal was 4 years back in 2018, now he looks healthier and we could not differentiate him from normal boy. He was undergone Enzyme Replacement Therapy ie Cerezyme via in vitro on bi weekly basis. From this 2 video, we can see how a treatment can change a family. In conjunction with World Rare Disease Day 2022 (28 Feb 2022), MLDA will be co-organising our pioneer RIDE with ...
Ride With Hope @ Miku Challenge
Переглядів 7052 роки тому
(Rembau 9th Jan 2022 ) In conjunction with World Rare Disease Day 2022 (28 Feb 2022), Malaysia Lysosomal Diseases Association (MLDA) will be co-organising with Malaysian Rare Disorders Society (MRDS), Persatuan Sindrom Prader-Willi Malaysia (PWS) and Persatuan Berbasikal Negeri Sembilan a pioneer Ride with Hope, a cycling challenge ar Bkt Miku, Rembau. The objective of the event is to create th...
Inspirational Story of Joel
Переглядів 4533 роки тому
This is a public awareness video educating public about lysosomal storage disease. It's a joint effort between MLDA & Sanofi Aventis(Malaysia) Sdn Bhd. And this video is timely publish 1 day before 15 May 2021, which is World MPS Disease Day. The Video and its contents are made available by Sanofi-Aventis (Malaysia) Sdn Bhd on an "as is" basis, and all implied warranties are disclaimed. The con...
#TogetherWeAreStrong ~ Swathi, the Pompe Warrior
Переглядів 8463 роки тому
This is a public awareness video educating public about lysosomal storage disease. It's a joint effort between MLDA & Sanofi Aventis(Malaysia) Sdn Bhd. And this video is timely publish 1 day before 15 April 2021, which is International Pompe Disease Day. The Video and its contents are made available by Sanofi-Aventis (Malaysia) Sdn Bhd on an "as is" basis, and all implied warranties are disclai...
Gogohope Virtual Sports Challenge
Переглядів 383 роки тому
We are launching our first fundraising event of 2021!! Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be optimistic in all challenges that everyone is currently facing. We all need "HOPE"! We look forward to your participation in the first ever Virtual Sport Challenge organised by MLDA. Simply click on the event pa...
Paris-Brest-Paris ~ Ride With Hope
Переглядів 4433 роки тому
Proudly present Paris-Brest-Paris Randonneur Ride With Hope Campaign video, the team members cycled 1,200km within 90hours from 18-22 August 2019 to raise public awareness for rare diseases children all around the world. Watch their challenges in completing this mission! This campaign is always there to remind everyone that it’s with each pedal stroke that we should be reminded those less fortu...
Journey of Thousand Hopes Start From Paris-Brest-Paris 2019
Переглядів 6105 років тому
On 18-22 August 2019, 3 Malaysian riders (Ir Lee Yee Seng, Faye Tan & Ben Chong Jun Keong) are challenging themselves cycled 1,200 km from Paris to Brest and back to Paris, in the pursuit by helping Lysosomal Storage Diseases (LSD) children in Malaysia, by initiating “Ride with Hope” campaign, which was the brainchild of MLDA president, Ir Lee Yee Seng. Aims to raise funds besides creating awar...
Respect brother Lee. Hope to ride again soon. Let me know next time you come to Thailand
My hemsem boi awipp. Alhamdulillah telah menerima rawatan sejak berusia 3 tahun Atas usaha semua pihak 💖💖🥰🥰.
Nice..im Wan from Seremban..all d best to you
Fantastic well done all the best
June 2016..................RIP Darmash, your fighting spirit will always with all of us.
'For LSD'..Well at least that's another good cause.
Darmash finally received his ERT in May 2015, thanks for all your prayers. He is one of the beneficiary from MOF 2 mil sponsorship program. Thank you to Health Minister Datuk Seri Dr Subramaniam for helping LSD children!
Darmash finally received his ERT in Aug 2015, thanks for all your prayers. He is getting humanitarian aids under Genzyme Sanofi sponsorship program. Thank you !
May Allah help you and you see Ammar geowing up infront of your eyes. I can feel everything bcz I have the same case in my daughter "Reem" she is 1 year now and Doctors just defined that she is Mucopolysiccharidosis. I see Reem's face on Ammar's face. hope our children live long and we see her happy. may Allah help you sister
Today 5.8.2014 Ammar had received his first enzyme replacement therapy at Hospital Kuala Lumpur. Thanks to Bank Simpanan National that help to fund for the treatment, we hope other GLC companies can come forward to adopt our children.
cikgu adam dan keluarga bersabarlah,saya dan team pdk akan cuba menolong rahman sedaya yang mampu insyAllah....
kabeerbakavi
malayalam
bekas cikgu bm sy.semoga cikgu tabah dgn dugaan.semoga allah permudahkan urusan cikgu
Insyaallah semoga dipermudahkan semua..
saya akan doa kan semoga jalan cikgu dipermudahkan
cikgu adam.. semoga cikgu dan sekeluarga tabah.. saya doakan dipermudahkan semuanya dan pertolongan Allah sampai dgn segera.. ameen -sakinah
To support our cause to save our children, please LIKE our page at Facebook so that we can gain more voices.
To know more about us, pls log on to facebook.com/pages/Malaysia-Lysosomal-Diseases-Association/101898083240617?ref=hl