Відео

Do you treat Juvenile Macular degeneration? I have 16 year old relative who’s vision is declining …

Hello Sir, Greetings from India. I'm a 37 year old male from India living with Best's vitelliform dystrophy. Please help me to live a normal life.

You are a wonderful doctor! Thank you for this information

How does one consult you? I see the same question from other viewers seem to have gone unanswered.

Hello sir I have a starguardts disease and others disease can you help me please

I wonder if those glasses work for people that have solar retinophay

Where can I buy that glasses ?

I required help from you

Cone rod dystrophie bitte trapie

Cone dystrophie zapfen stâbchen dystrophie cep78 gen 🙏

requried your whatsapp number \

Any treatment of Stargdt disease patients please

Any treatment of Stargdt disease patients please

Hi from Ohio

Hello kindly help me for driving as I had left side homonymous hemianopia

I’m suffering from the condition, I’m 23 female & it’s only getting worse. My life is not the same.. I hope if there’s cure or something or even procedure to help us manage & safe our eyesight 😔

We're from Philippines..and hoping that you can help my two kids with a diagnosed of stargadt disease...their vision is blurred and many times they did not enjoyed the school activities with their situation..hoping that any treatment that will help us ..thank you

We're from Philippines..hoping you will help my two kids with a condition of this stargadt disease so they can enjoy their lives and also in school..thank you

😮

Hi I have a child in India with best disease how do I connect for assistance.

I appreciate this video!

I am going to see a doctor about the biotech classes. My vision is calculated at 20-400. However I was told that once you get up fairly high they just take you all the way to 2400. I have lavers hereditary optic neuropathy is it possible I could🎉 be 20-150 or 20-200?

Sir I'm from Pakistan and having same issue can you help me in this regard

For hemianopia use Coenzyme Q10 , 100mg for at least 2 years, check on google about this

Is there cure for cone rod disterfi

Thanks for posting this - it gives me some hope.

I am from Singapore & I have this condition for over 30 years. Can you please help me?

I was diagnosed with Stargardt's disease when I was in the army at age 25. It is now to the point to where I can no longer drive as objects disappear in my vision. Recently I had to have an injection because one of the abnormal blood vessels that Stargardt's helps produce was bleeding into my retina. I can no longer make out faces as peoples forhead goes down to their cin now until I am up close. I was f ortunately that my employer values me enough to let me work from home but I have to use a very large tv in order to be able to do my job.

I was diagnosed with stargardt’s back in 1986 at Walter Reed Medical Center and subsequently discharged without a disability because it was genetic (although In ave found out the military has given disabilities to people with Macular Degeneration) enough of that. I am not at the point where for the last 3 years they have been unable to correct my vision so everything is blurred and I ended up having to voluntarily give up driving beause things disappear in my vision. I would love to find out if there is genetic therapy in the works to help correct this.

I need help

When medicine will available .

I was diagnosed with stargardts when i turned 40. After doing the genetic testing they found that my abca4 is not the problem. Fast forward to now 4 years later and my central vision has drastically deteriorated to the point that I can no longer see faces clearly since i have blind spots in my central vision, driving is out, night or low light vision is horrible and bright sunlight hurts so I always need to wear dark sunglasses whenever i am outside. This disease has killed my way of life due to the things i used to do well i can no longer do anymore and am now having to adjust my entire life around this disease. I hope that some day soon science and technology can come up with a work around to this problem. I never thought I would go blind at 40.

any treatment in upcoming days

Am living with this in Kenya

Thanks

Dr Stamm is making it sound like Best Disease is no big deal and doesn't affect the patient mich. I disagree. Bests has affected me significantly since a young age. For about 2 years from the age of 11 I had ongoing double vision. I pretty much faked my way though education, being unable to read blackboards, whiteboards, or books. I stopped driving at the age of 30 because I knew I wasn't safe on the roads. These days I have a wide variety of visual aids to help me manage day-to-day life as best I can. I decided many years ago not to have children because I didn't want to be responsible for burdening anyone else with this condition. I have suffered with ongoing mental health problems since the age of 11, which I believe primarily stem from Bests. Having this condition affects my life in every way. For someone - even a doctor - to imply that having this is no big deal, is both insensitive and insulting. Also, to imply that a distance visual test, sich as Snellen, is the sole defining factor of how severe someone's sight problems are, or to what extent their life is affected, is completely ridiculous.

❤❤❤

I have the se illness and 31 r9ght i can feel my eyesight are deteriorating and the treaent here in the Philippines cost alot im really disappointed that here i dont have the seme ooportunitt for treatment. I hope you can find a cure for this.

I have Best. It's progressive for some people. I'm in stage 5. Visual acuity is 20/400. Central vision loss due to retinal scarring. I'm now 66. The title of the video says "juvenile" macular degeneration. My doctors haven't identified Best as related only to young people. The genetic condition is the same from birth to old age. Some people never experience symptoms and others have symptoms arrive at any age. It doesn't seem correct to label Best as a "juvenal" disease that doesn't progress beyond 20/125? I'm not a doctor, but the distinctions made in this video are not what my doctors told me.

Sir , is there any machine to check whether the patient have low vision or not

Here here, i love this mission, because it's totally true, not enough people and/or professionals are aware of the plethora of devices, technologies, and services that are available to help visually impaired individuals and that's quite sad. My goal is to help with this mission, i believe it is crucial for this information to be spread to every corner of the earth.

Hlo

I am living in India. I want read board of the bus for travel.

I have another symptoms can I consult you on your email for more details

Sar i am strock petcent sar strock beefor side vision loss sar pliz help mi

I have pathological myopia with -22 prescription. I am 35 years old living in Pittsburgh and had history of few lasers and couple of injections for myopic CNV. Currently my vision is ok but getting really touch to get ophthalmologists who can provide me exact prescription for my glasses and contacts as whoever we call they say that we see up to -19 to -20.

In your comment you stated one cannot use it with prescription drugs. Well ,presently I'm on high blood pressure pills and also some pills to lower my cholesterol. Also I take other vitamin supplements. Does it mean it is advisable for me not to take the pills?

Where do I call..I have cone rod dystrophy and need help

Bests disease in adults

What about adults?