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Heartland Regional Genetics Network
United States
Приєднався 6 сер 2020
The major purpose of the Heartland Genetics and Newborn Screening Collaborative is to improve and expand the capacity of state public health genomics programs and clinical genetics service programs to provide quality screening, testing, diagnostic, counseling, treatment, and management services to those having or at risk for heritable disorders in a way that is culturally sensitive, collaborative, and responsive to our states’ and regional needs.
We work to improve: access to expanded newborn screening; professional and public genetics literacy; equitable access to genetics evaluation; counseling and testing services; and cooperation between neighboring states within the region. We facilitate and promote collaboration, assessment, planning, program development and evaluation, education, research and public policy activities related to these issues.
We work to improve: access to expanded newborn screening; professional and public genetics literacy; equitable access to genetics evaluation; counseling and testing services; and cooperation between neighboring states within the region. We facilitate and promote collaboration, assessment, planning, program development and evaluation, education, research and public policy activities related to these issues.
Heartland Newborn Screening Video (Marshallese)
Kemij mõnõnõ in kwalok video in ilo kilaan kautiej allõñ in an Kakõlkõl Eo Kein Kajuon An Niñniñ (Newborn Screening) im baamle in Majel ro mottam.
Переглядів: 68
Відео
Testimonials from Families with Genetic Conditions (Spanish with English Subtitles)
Переглядів 92День тому
This heartfelt video shares the personal experiences of parents navigating the complexities of the healthcare system to conduct tests, diagnose, and find care and support for their children with genetic conditions. These moving stories are a testament to parents' resilience, hope, and unwavering love for their children. Join us as we listen to families who have faced these challenges head-on, s...
How and Why Newborn Genetic Screening is Used to Identify Medical Conditions (English)
Переглядів 116Місяць тому
Did you know babies born in the USA receive a newborn genetic screening test to detect medical conditions? Learn how testing is done and what to expect if your child receives a positive result for a genetic condition. If recommended, working with a genetics team as soon as possible is critical to treating symptoms and preventing serious complications. Next, learn about genetic clinics and what ...
What to Expect During Your Child’s First Genetic Clinic Visit (English)
Переглядів 140Місяць тому
Know what to expect during your child’s first visit to a genetic clinic. Find answers to your questions: • Who will I meet with? • How do I prepare for a genetic test? • How long will the test take? When you’re prepared, you’ll be able to assist the genetics team in determining the best medical path for your child. Next, learn how to request and work with an interpreter during your genetic coun...
How to Prepare for and Understand Your Child’s Genetic Test (English)
Переглядів 70Місяць тому
Before your child’s genetic testing appointment, learn about different genetic tests. Understand how genetic tests are performed, what genetic variants are, and possible management and treatments. Next, learn how and what newborn genetic screening is done when a child is born in the USA at ua-cam.com/video/yFfmLYh50Tc/v-deo.html. If you found this information helpful, please like our video To r...
How Chromosomes and Genes Affect Genetic Conditions in Children (English)
Переглядів 223Місяць тому
Learn about the relationship between chromosomes and genes. Understand how changes in the number or structure of chromosomes can result in a genetic condition and how this genetic variant may change how your child’s body or brain develops and functions. Next, learn what a genetic test is and how to prepare for your child’s test at ua-cam.com/video/F75J7jgQYSw/v-deo.html. If you found this infor...
How to Request and Work with an Interpreter During a Genetic Clinic Visit or Medical Visit (English)
Переглядів 51Місяць тому
This short video explains how to request and work with an interpreter when you and your child visit a genetic clinic. Learn about your rights and how an interpreter can help you better communicate with the health care provider to make informed decisions. Next, learn what chromosomes and genes are and how they can affect your child’s health at ua-cam.com/video/rf3Zr5Hv6GY/v-deo.html. If you foun...
Testimonios de Familias con Condiciones Genéticas (Spanish)
Переглядів 1512 місяці тому
Este video emocionante profundiza en las experiencias personales de padres que navegan las complejidades del sistema de salud para realizar pruebas, diagnosticar y encontrar cuidados y apoyo para sus hijos con condiciones genéticas. Estas conmovedoras historias son un testimonio de la resiliencia, la esperanza y el amor inquebrantable de los padres hacia sus hijos. Únete a nosotros mientras esc...
Ta Eo Emaron̄ Bōk Jikin Ilo Juōn Ien Taktō In Bōdan̄ (Marshallese)
Переглядів 202 місяці тому
Jelā ta ko remaron̄ bōk jikier ilo ien taktō en kein kajuōn an ajiri eo nejūm ilo jikin taktō in bōdan̄ en. Kabbok uak n̄an kajjitōk kein am: Wōn ro inaaj ion er? ,kabojak n̄an kakōlkōl in bōdan̄?, Ewi aetokan kakōlkōl in? N̄e kwōj pōjak, komaron̄ jiban̄ team in mijen bōdan̄ en beke karōk ko remman tata ikijjien taktōiki ajiri eo nejūm. Elikin, katak kin jikin taktō in bōd...
Kakōlkōl in Bōdan̄ En an Nin̄nin̄ Ko Rej Kab Lo̗tak Ej Walo̗k Nan̄inmej ie (Marshallese)
Переглядів 252 місяці тому
Kwar jelā ke nin̄nin̄ ko rej lo̗tak ilo Amedka rej bōk juōn kakōlkōl in bōdan̄ an nin̄nin̄ n̄an kabbok nan̄inmej? Katak kilen kakōlkōl in im ta ko remaron̄ bōk jikier n̄e ewalo̗k juōn mijen bōdan̄ ilo jemlo̗k in kakōlkōl eo an ajiri eo nejūm. N̄e taktō rej ba, jerbal ibben juōn team in mijen bōdan̄ ilo ien eo emōkaj tata eaurōk n̄an kōmadmōde kakōlle ko im bōbrae jen an d...
Wāwein an Chromosome im Kijin Bōdan̄ Jelet Mijen Bōdan̄ ko an Ajiri (Marshallese)
Переглядів 272 місяці тому
Katak kin kōta eo kōtaan chromosome im kijin bōdan̄. Melele kin kilen an jenij in nōmba ak jōkjōk in chromosome ko maron̄ walōk ilo juōn mijen bōdan̄ im kilen an likjab in ilo kijin bōdan̄ maron̄ in ukōt wāwein an enbwin ak kōmelij eo an ajiri eo nejum edrōklo̗k ak jerbal. Elikin, katak kin jikin taktō in bōdan̄ ko im wāwein ko remaron̄ bōk jikier ilo ien taktō en kein kajuō...
Kilen Keppopo Im Melele Kin Kakōlkōl In Bōdan̄ eo an Ajiri ne Nejūm (Marshallese)
Переглядів 282 місяці тому
Mokta jen ien kakōlkōl in bōdan̄ eo an ajiri oe nejūm, katak kin kain in kakōlkōl in bōdan̄ ko. Melele kilen an kakōlkōl in bōdan̄ ko kōmman, ialmen likjab ko ilo kijin bōdan̄, im n̄e ewor kilen kōmadmōde im taktōiki. Elikin, katak kin jikin taktō in bōdan̄ ko im wāwein ko remaron̄ bōk jikier ilo ien taktō en kein kajuōn an ajiri ne nejūm ua-cam.com/video/aPg1AivbO-E/v-deo...
Kilen Kajjitōk im Jerbal ibben Juōn Rukook Ilo Ien Bōk Melele ak Taktō in Bōdan̄ (Marshallese)
Переглядів 422 місяці тому
Video jidrik in ej kōmeleleiki kilen kajjitōk im jerjbal ibben juōn rukook n̄e kwe ak ajiri eo nejūm ej lo lo̗k juōn jikin taktō in bōdan̄. Katak jimwe im maron̄ ko am im wāwein an juōn rukook maron̄ jiban̄ bwe en emmanlo̗k amiro taktō eo kōmeleleiki dron n̄an kōmmani jōkelet ko. Elikin, katak kin jikin taktō in bōdan̄ ko im wāwein ko remaron̄ bōk jikier ilo ien taktō en kein ...
Heartland ECHO Series 2 Cystic Fibrosis
Переглядів 497 місяців тому
Heartland ECHO Series 2 Cystic Fibrosis
Heartland ECHO Series 1 Congenital Hypothyroidism
Переглядів 758 місяців тому
Heartland ECHO Series 1 Congenital Hypothyroidism
Genetics Evaluation Resource Portal: A Collection of Resources You Can Sort, Save, and Share
Переглядів 86Рік тому
Genetics Evaluation Resource Portal: A Collection of Resources You Can Sort, Save, and Share
Kakōlkōl Lo̗jiln̄i Eo Kein Kajuōn An Nin̄nin̄ Ne Nejūm (Marshallese)
Переглядів 1612 роки тому
Kakōlkōl Lo̗jiln̄i Eo Kein Kajuōn An Nin̄nin̄ Ne Nejūm (Marshallese)
How to Prepare for and Understand Your Child’s Genetic Test (Spanish w/English Subtitles)
Переглядів 5302 роки тому
How to Prepare for and Understand Your Child’s Genetic Test (Spanish w/English Subtitles)
Cómo prepararse y entender la prueba genética de tu hijo (Spanish)
Переглядів 12 тис.2 роки тому
Cómo prepararse y entender la prueba genética de tu hijo (Spanish)
May 27 Project ECHO 2022 Summer Series "The Genetic Testing Journey: Who, What, and How"
Переглядів 912 роки тому
May 27 Project ECHO 2022 Summer Series "The Genetic Testing Journey: Who, What, and How"
Disproportional transient C3 elevations on Marshallese newborn screenings: what do these mean?"
Переглядів 1242 роки тому
Disproportional transient C3 elevations on Marshallese newborn screenings: what do these mean?"
Getting the Best Out of Prior Authorizations and Letters of Medical Necessity
Переглядів 1993 роки тому
Getting the Best Out of Prior Authorizations and Letters of Medical Necessity
How Chromosomes and Genes Affect Genetic Conditions in Children (Spanish w/English Subtitles)
Переглядів 1,3 тис.3 роки тому
How Chromosomes and Genes Affect Genetic Conditions in Children (Spanish w/English Subtitles)
Cómo los cromosomas y genes afectan las condiciones genéticas en los niños (Spanish)
Переглядів 95 тис.3 роки тому
Cómo los cromosomas y genes afectan las condiciones genéticas en los niños (Spanish)
What to Expect During Your Child’s First Genetic Clinic Visit (Spanish w/English Subtitles)
Переглядів 9503 роки тому
What to Expect During Your Child’s First Genetic Clinic Visit (Spanish w/English Subtitles)
How to Request & Work with a Genetic Clinic/Medical Visit Interpreter (Spanish w/English Subtitles)
Переглядів 3823 роки тому
How to Request & Work with a Genetic Clinic/Medical Visit Interpreter (Spanish w/English Subtitles)
bien video😊
delen like😂
Quedo muy bien el video. Gracias, a las madres por su testimonio.
Muy informativo Fácil de entender Excelente trabajo 👏
Y q enfermedad tiene pablo?
Tuve mi clase y no entendí muy bien por eso vine al video
Ahora recien lo entendi tanto tiempo vivia ciega buen video 👍
Pregunta: Que es el Cromosoma 23 ? Porque su importancia ?
El cromosoma 23 es el cromosoma sexual, el que indica el sexo, este puede ser xy (hombre) o xx (mujer), aparte de ser células que hacer meiosis y no mitosis al multiplicarse
Nunca estuve aquí..*desaparece*
te vi *desaparece tmb *
@@emilyaguilera231 😡
Yo recuerdo que cuando era niña en mi pueblo .se hacian un tes de sangre de genetica..para saver si eran compatibles... para tener hijos sanos..antes..de casarse.. O antes de embararsarse......
me he visto miles de videos para entender ésto, o era muy corta de cabeza o nadie te lo explica bien!! ahora lo entendí un poco más, juro que no sabia donde estaba el adn y cuales eran los genes y como se formaba el cromosoma, DIOS!!! hay tanto "maestros y profesores" que te explican de mil maneras y no hay caso!! éste video tan simple me ayudo un monton, gracias!!
me paso lo mismo he visto muchos videos y no sabia si la celula era el ADN O ESTA ESTABA DENTRO DE LA CELULA O DONDE ESTABAN LOS GENES. pero hoy entiendi bien