![Anna-Maria Kaf](/img/default-banner.jpg)
- 7
- 35 387
Anna-Maria Kaf
United Kingdom
Приєднався 21 кві 2014
My name is Anna-Maria Kaf and I was diagnosed with Multiple Sclerosis (MS) in August 2018. Since then, I have thoroughly reviewed the available research on MS because I strongly believe that knowledge is key to remaining as healthy as possible. I was inspired to create this channel to share what I have learned with others. There are seemingly a lot of unknowns when it comes to MS and this uncertainty terrified me at the point of diagnosis. I am keen to reassure you that there is much more to know about MS than it would first appear, and more importantly, there is a lot that you can do to manage your MS.
My channel will cover a range of MS-related topics, such as; alternative/medical therapies, diet, exercise, mindfulness, and the latest in MS research worldwide. Please subscribe to follow me on this journey of learning so that we can be happy and healthy with MS together. Feel free to connect with me on social media as I am always available to answer any questions you might have.
My channel will cover a range of MS-related topics, such as; alternative/medical therapies, diet, exercise, mindfulness, and the latest in MS research worldwide. Please subscribe to follow me on this journey of learning so that we can be happy and healthy with MS together. Feel free to connect with me on social media as I am always available to answer any questions you might have.
Lemtrada (Alemtuzumab) Update: Four Years Later
In this video, I provide a second update on my treatment with the monoclonal antibody Alemtuzumab, brandname Lemtrada. Feel free to leave a comment down below or reach out to me on Instagram @annamariakaf.
Переглядів: 476
Відео
Lemtrada (Alemtuzumab) Update
Переглядів 1,5 тис.3 роки тому
In this video, I provide an update on my treatment with the monoclonal antibody Alemtuzumab, brandname Lemtrada. The topics I cover are: Lympocyte Count, Disease Progression and Side Effects. Feel free to leave a comment down below or reach out to me on instagram @annamariakaf. There are many support groups online and I am a member of groups/MSUK1/ Music - Honey by Moow: ua-cam.com...
Am I shielding due to COVID-19? I have MS and I've had Lemtrada
Переглядів 9754 роки тому
Watch this video to find out if I'm shielding because of COVID-19. I was diagnosed with Multiple Sclerosis in August 2018 and since then I have had two cycles of Alemtuzumab, aka Lemtrada. I had my second cycle of Lemtrada in December 2019. This means that I'm immunocompromised. If you have MS and are immunocompromised and live in the UK, please contact your GP or consultant to check if you sho...
How to Cope with Your MS Diagnosis: 7 Practical Tips to Get You to a Place of Acceptance
Переглядів 1,1 тис.4 роки тому
In this video, I provide you with 7 practical tips to come to terms with your multiple sclerosis diagnosis. If you are newly diagnosed and in need of emotional support, speak to your doctor about what counselling services are available in your area. To check out IAPT services in England, use the following URL: www.nhs.uk/service-search/other-services/Psychological therapies (IAPT)/LocationSearc...
What is Alemtuzumab aka Lemtrada?: Infusion Treatment for Relapsing and Remitting Multiple Sclerosis
Переглядів 2,2 тис.4 роки тому
Alemtuzumab is 1 of 15 treatments for Relapsing and Remitting MS in the UK. In this video; I explain what it is and how it works, and its current use after recent controversy around serious side effects, resulting in a warning from the European Medicines Agency (EMA) - the EMA now restricts the use of alemtuzumab in new patients. I will discuss what some of the common and rare serious side effe...
What is MS?: Autoimmune Disease, Common Symptoms, The 3 Types of MS, & The Cause
Переглядів 1,8 тис.4 роки тому
In this video I cover the current medical thinking about multiple sclerosis; that it is an autoimmune disease that affects the central nervous system (CNS), and more specifically, the myelin sheath that insulates the nerves in the CNS; as well as the common MS symptoms that can arise due to this neurological damage. I go on to explain the three different types of MS, namely relapsing and remitt...
My MS Story: Initial Symptoms, Hospital Error, Diagnosis, Treatment and Positive Mindset
Переглядів 27 тис.4 роки тому
Three and a half years on from my first relapse, and after a significant hospital error, I was diagnosed with Multiple Sclerosis (MS) in August 2018. Having spent the last year researching the condition, I decided to create a UA-cam channel to share what I have learned with others around the globe, beginning with my MS story. In this video I cover my initial symptoms; the hospital mistake made ...
❤️
You look good!
DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES……….
DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES……….
Thank you. I needed this.
Thank You
Hi Anna-Maria- 1st time viewer and happy to hear you are doing well. I am an MSer's as well on Kesimpta for 2 years so far. I am so grateful to be doing well on this and love the flexibility of taking it from home 1x a month. I wish you continued success and plz keep us updated on your journey. love from the US
Who Knew?? #BloodFlowMatters Supplying Oxygen and Nutrients to every Cell along with clearing toxic brain waste, what is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal flow, impacting neurological symptoms regulating mood and cognitive Senescene Psych issues? #CCSVI #BloodFlowMatters With age, blood flow to the brain decreases b/c blood vessels produce less nitric oxide, a gas that expands blood vessel walls. Such disruptions contribute to changes in cognitive function that occur with age. #Exercise increases nitric oxide & boosts blood flow to the brain. #Urgent #BloodFlowMatters Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain, which after years results in MS Sleeping is a Silent threat to mankind! Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI Help facilitate Neurovascular Disease Research Best chance for longevity quality of life depends on availability Neurovascular Disease Research Collaboration. '“When we age, one of the common things that happens within our brain is that the blood vessels do become compromised in part because of chronic conditions,” it is said. “And when that occurs in normal aging, what happens within the brain is … silent strokes.”' As much CCSVI has been Scientifically established to have a role/part in 43 so Neurological afflictions including Dementia and so called MS 'There is evidence to suggest COVID-19 impacts the same blood vessels that feed the brain. If the virus is damaging those vessels, which could speed up aging, this, in turn, means some survivors might be at risk of getting early-onset dementia.' Time for Learning Science #BloodFlowMatters Apparantly nothing else matters critical Healthcare So happens CCSVI a TREATABLE Congenital Science Confirmed Recognized Med Condition STUDIES show causative factor so called Multiple Sclerosis & role/part 43 other SO called Neurological Afflictions Incl. Migraines, Asperger Autism Dementia/Alzheimer's Aphasia Optic Neurtis Tinnitus Transverse Myelitis Ect! facilitate collaboration defining the path forward establishing the understanding and treatment of Neurovascular disease organizing unified clarity in Science knowledge and progress!⁰⁰ Critical Healthcare Research addressing Neurovascular/Cardiovascular Disease including Heart & Brain function Amygdala Dopamine/Serotonin related Mental Health Depression Vascular Disease issues! #anxiety #VascularDepressionConsensus FB Group: MultipleStenosisSociety t.co/7JNmFD7W4l Apparently What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow Impacting circulation and homeostasis balance? #CCSVI #BloodFlowMatters #spasticity #perfusion Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain CCSVI is Science Confirmed Recognized Medical Condition STUDIES show causative factor MS Varicose Veins Fatigue Atrophy Inflammatiion Thyroid issues Covid-19 Heart function matters Cramps Mental Health problems Bowel & Bladder affairs insomnia Senescene Psych unusual behavior! Studies have shown that mostly ineffective often harmful or poorly tolerated Pharmaceuticals that 'TREAT' so called Multiple Sclerosis (M$) $20-40Billion W/a B/yr industry! Living with the Symptoms of Multiple Sclerosis is torturous tortuous tumultuous utter misery! Chronic Cerebrospinal Venous Insufficiency CCSVI/Neurovascular Disease CCSVI is a Treatable Congenital Scientifically Confirmed Recognized Medical Condition, Established Causative Factor in Multiple Sclerosis SymptoMS, AND plays a part 43 other so called Neurological afflictions! CCSVI may be impacting yourself right now and you are unaware! #CCSVI Apparently the Sooner a Person Receives Venous Angioplasty for Treatment of CCSVI! best possibility eliminating cause of MS Symptoms and easing or disappearing! So Called Multiple Sclerosis is more important to some than others Pharmacists, The M$ Society, Neurologists 'so called MS experts', Cane Manufacturing, Scooter and Power Chairs companies, etc Etc ETC So Called Multiple Sclerosis (MS) is/HAS been a MYSTERIOUS elusive UNPROVEN Autoimmune THEORY solely based on SYMPTOMS! STUDIES show Pharmaceuticals That 'TREAT' so called MS only 20-40% Effective DO NOT slow Progression of the Disease Often have Harsh Corrosive Side Effects sometimes DEATH! #CCSVI So Called Multiple Sclerosis (MS) is/HAS been a RUBBISH UNPROVEN Autoimmune THEORY Based Solely on SYMPTOMS! #CCSVI Venous Hypertensiono >microbleedings >iron >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Hypertension M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ neuro inflammation #CCSVI So happens, to mention apparently, Neurogenesis and Homeostasis, are often side effects of Venous Angioplasty treating CCSVI!! Apparently sooner treatment best possiblity Symptoms easing or disappearing. 1/1 #CriticalHealthcare_Research #CCSVI Neurogenesis is the process by which new neurons are formed in the brain. Neurogenesis is crucial when an embryo is developing, but also continues in certain brain regions after birth and throughout our lifespan. qbi.uq.edu.au › brain-basic Homeostasis is an internal feedback system that stabilizes and balances our body's chemistry, so that our organs work smoothly and efficiently with each other. Sickness is the disruption of homeostasis, which doctors treat with medicine.Oct 20, 2016 www.bmj.com› bmj.i5643 Blowing the Whistle on Corrupt Pharmaceutical Industry by Gwen Osen FB Group: MultipleStenosisSociety facebook.com/share/p/jQxWX5Ce6sZgzmky/?mibextid=oFDknk
Keep in mind #BloodFlowMatters #CriticalHealthcare_Research Horizontal sleeping Who Knew?? #BloodFlowMatters Supplying Oxygen and Nutrients to every Cell along with clearing toxic brain waste, what is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal flow, impacting neurological symptoms regulating mood and cognitive Senescene Psych issues? #CCSVI #BloodFlowMatters With age, blood flow to the brain decreases b/c blood vessels produce less nitric oxide, a gas that expands blood vessel walls. Such disruptions contribute to changes in cognitive function that occur with age. #Exercise increases nitric oxide & boosts blood flow to the brain. #Urgent #BloodFlowMatters Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain, which after years results in MS Sleeping is a Silent threat to mankind! Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI Help facilitate Neurovascular Disease Research Best chance for longevity quality of life depends on availability Neurovascular Disease Research Collaboration. '“When we age, one of the common things that happens within our brain is that the blood vessels do become compromised in part because of chronic conditions,” it is said. “And when that occurs in normal aging, what happens within the brain is … silent strokes.”' As much CCSVI has been Scientifically established to have a role/part in 43 so Neurological afflictions including Dementia and so called MS 'There is evidence to suggest COVID-19 impacts the same blood vessels that feed the brain. If the virus is damaging those vessels, which could speed up aging, this, in turn, means some survivors might be at risk of getting early-onset dementia.' Time for Learning Science #BloodFlowMatters Apparantly nothing else matters critical Healthcare So happens CCSVI a TREATABLE Congenital Science Confirmed Recognized Med Condition STUDIES show causative factor so called Multiple Sclerosis & role/part 43 other SO called Neurological Afflictions Incl. Migraines, Asperger Autism Dementia/Alzheimer's Aphasia Optic Neurtis Tinnitus Transverse Myelitis Ect! facilitate collaboration defining the path forward establishing the understanding and treatment of Neurovascular disease organizing unified clarity in Science knowledge and progress!⁰⁰ Critical Healthcare Research addressing Neurovascular/Cardiovascular Disease including Heart & Brain function Amygdala Dopamine/Serotonin related Mental Health Depression Vascular Disease issues! #anxiety #VascularDepressionConsensus FB Group: MultipleStenosisSociety t.co/7JNmFD7W4l Apparently What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow Impacting circulation and homeostasis balance? #CCSVI #BloodFlowMatters #spasticity #perfusion Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain CCSVI is Science Confirmed Recognized Medical Condition STUDIES show causative factor MS Varicose Veins Fatigue Atrophy Inflammatiion Thyroid issues Covid-19 Heart function matters Cramps Mental Health problems Bowel & Bladder affairs insomnia Senescene Psych unusual behavior! Studies have shown that mostly ineffective often harmful or poorly tolerated Pharmaceuticals that 'TREAT' so called Multiple Sclerosis (M$) $20-40Billion W/a B/yr industry! Living with the Symptoms of Multiple Sclerosis is torturous tortuous tumultuous utter misery! Chronic Cerebrospinal Venous Insufficiency CCSVI/Neurovascular Disease CCSVI is a Treatable Congenital Scientifically Confirmed Recognized Medical Condition, Established Causative Factor in Multiple Sclerosis SymptoMS, AND plays a part 43 other so called Neurological afflictions! CCSVI may be impacting yourself right now and you are unaware! #CCSVI Apparently the Sooner a Person Receives Venous Angioplasty for Treatment of CCSVI! best possibility eliminating cause of MS Symptoms and easing or disappearing! So Called Multiple Sclerosis is more important to some than others Pharmacists, The M$ Society, Neurologists 'so called MS experts', Cane Manufacturing, Scooter and Power Chairs companies, etc Etc ETC So Called Multiple Sclerosis (MS) is/HAS been a MYSTERIOUS elusive UNPROVEN Autoimmune THEORY solely based on SYMPTOMS! STUDIES show Pharmaceuticals That 'TREAT' so called MS only 20-40% Effective DO NOT slow Progression of the Disease Often have Harsh Corrosive Side Effects sometimes DEATH! #CCSVI So Called Multiple Sclerosis (MS) is/HAS been a RUBBISH UNPROVEN Autoimmune THEORY Based Solely on SYMPTOMS! #CCSVI Venous Hypertensiono >microbleedings >iron >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Hypertension M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ neuro inflammation #CCSVI So happens, to mention apparently, Neurogenesis and Homeostasis, are often side effects of Venous Angioplasty treating CCSVI!! Apparently sooner treatment best possiblity Symptoms easing or disappearing. 1/1 #CriticalHealthcare_Research #CCSVI Neurogenesis is the process by which new neurons are formed in the brain. Neurogenesis is crucial when an embryo is developing, but also continues in certain brain regions after birth and throughout our lifespan. qbi.uq.edu.au › brain-basic Homeostasis is an internal feedback system that stabilizes and balances our body's chemistry, so that our organs work smoothly and efficiently with each other. Sickness is the disruption of homeostasis, which doctors treat with medicine.Oct 20, 2016 www.bmj.com› bmj.i5643 Blowing the Whistle on Corrupt Pharmaceutical Industry by Gwen Osen FB Group: MultipleStenosisSociety facebook.com/share/p/jQxWX5Ce6sZgzmky/?mibextid=oFDknk causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain, which after years results in MS Sleeping is a Silent threat to mankind!
Well done. You have a positive attitude and that will help you so much.
Thank you for saying so
music too loud compared to voice
Thanks for the feedback. New video has no background music. Take care
Hope you're doing ok. We're all here with you 🧡
Thank you, we’re all on this journey together x
Do you know if there is a clinical study in my city
Please check for that information locally as I wouldn’t know. All the best
Thank you for posting this, I really want it. I need someone to contact me in Rio de Janeiro😊
There are so many falsities for the medication your
I was originally set up on my neurologist for okemos what was told later it would not work.
Wany
Doctors do more effort for insurance companies than patients obviously
Which is why we should aim to be our own advocates and keep as informed as we can along the way. All the best
@@annamariakaf Thank you...
Your more supported in groups online, than you are with family and friends 😢
Sometimes that may be the case but fortunately we do have access to these groups now.
Thank you.
I was diagnosed Sept 19 this year. MRI’s contrast and no contrast of brain and spine. 8 brain lesions and three spinal 😢numbness and tingling began last month. A year before that I had heat sensitivity and fatigue. No answers at the time for that. Now I know. I’m in my 40’s. I’m thinking of Tysabri if I’m not JC positive. I feel like my life is over
It can feel like your life is over at the time of diagnosis but please believe me when I say it gets so much easier. I actually made a video about coping with your MS diagnosis that you might find useful. Please please please don’t give up hope because there is so much life left to live, and many things to be grateful for, even if you can’t see that at this point. ua-cam.com/video/Qd9KgQEvn20/v-deo.htmlsi=8rABlitKMgOWCm5B
Oh sweetheart you're such a beautiful lady this shouldn't be happening to someone like you. Lots of love and hugs.
Thank you. All the best
I haven't been tested for MS yet but I do have a lot of the symptoms for it. I plan to get tested soon but while that happens, I've been trying to learn more about MS. One thing that's been happening to me recently is that whenever the sky is gray (meaning very cloudy and looks as if it's about to rain), I get very anxious and I don't know why but I just don't feel well. I don't know if this can somehow be related to MS (if it iS MS that I have). I've read online that anxiety can be a symptom of MS.
Yes it can be...bad anxiety.
I hope your test will reveal what’s causing your symptoms. Some conditions can be mistaken for MS so ensure that you see a doctor asap
The last sentences made me tear up: "You are loved and there is hope!" Thank you so much for uttering those words as they really made me believe them! Thank you so much! 💕💖💛💖💕💖💛💖💕
Hi sweetheart, I was dx at 17 in 1994 - 30 years ago next year. The diagnosis is a bereavement- it’s a mental possible loss of your future perfect health, career plans, parenting plans, everything your mind can torment you with..BUT Like a bereavement, THE FIRST 2 years are the Worst I promise you❤️🙏🏼😊 I had 3 bouts of numbness from 1991 that were put down to trapped nerve, atypical migraine, stress…!? I also had a bout of vertigo that was so bad that I had to crawl on my hands and knees to the bathroom as the whole world span if i lifted my head from horizontal that lasted 9 days. When the vertigo resolved I had double vision I was finally dx when I had a further bout of right sided numbness including my head and lost joint position sense at the shoulder. There were no treatments back then. And like you the MRI terrified me and I cried all the way through it! I didn’t have a DMT until 8 years later in 2002, 11 years after my sx. I’ve just come out of a relapse after a 7 year remission off DMTs- still all sensory- New lesion at C7/T1 which caused numbness down left side, loss of joint position sense at knee (that’s why you get that dragging leg-it’s still a sensory symptom) Now 95% recovered without steroids after 5 weeks and am starting Kesimpta in July I still get that utter Euphoria when my symptoms remit, and my heart & soul are full of gratitude for everything that my body can still do so well. I feel like every movement and sensation is miraculous ❤️🙏🏼 Back to now. I’m still RRMS and have got my degree, had a family, a great career, my EDSS is only 4 so I’m doing really really well!! When I was dx I wish an older person had gifted me with telling me what things would be like in the future as uncertainty is our burden. Everything will be ok my darling as our prognostic factors are identical Young, female, visual,sensory symptoms at onset You will achieve all your dreams and become more Resilient, Resourceful and Compassionate than 🎉would ever believe You’re going to be ok xxxx
At least they admitting they made a mistake. Mine wouldn’t.
I took mavenclad this past year for my MS. I didnt realize how sick i was until i got better. The chemo made me very ill. But because of MS i did not think anything of it. Than my body recovered from it. I havent had any MS symptoms since. I hope it worked. I never felt so alone
Chemo ?
@@RobdeKlerk-qg6lc chemotherapy
I have MS... dx,d 2002. I was called lazy,a drunk, a drug addict, lost everything job house family. Homeless not eatting. It sucked.
Thanks for your clear, concise explanation - best wishes 💃🌻
Hi Anna,thanks a lot for that valuable video! I really wonder whats your current EDSS ? How did your doc decide to apply alemtuzumab? thanks a lot!
Hey Reyiziz my EDSS score is 0 and it always has been. It was actually I that asked my consultant for Lemtrada because at that time it was the most effective DMT on the market. He agreed with me that it would be best to treat the MS aggressively from the outset. Hope this helps x
How are you going? And would Today maybe ofatumumab be the best choice!?
Thank you for sharing your story ✌️
You're most welcome, thanks for watching!
UA-cam Alan MacDonald : MS is a parasitosis ua-cam.com/video/EHVXJpDBcmU/v-deo.html
I just discovered your channel and would like to follow you on instagram. I will be starting lemtrada in a few months. More videos!
Awesome! Thank you! I hope you’re treatment went well x
You Tube Alan MacDonald MS is a parasitosis
I have some symptoms of MS. I had a my MRI a couple weeks ago and the neurologist gave me results today saying they were clean but he didn't show me the picture and or explain anything to me. I haven't felt well since I caught mono at 17 and now I'm 31. Drs. always tell me it's my anxiety and since I'm young, and most of my blood work comes back normal that I shouldn't have anything wrong with me. Last blood work my Vitamin D was low and high white blood cells that come and go. They can't figure out why my white blood cells are elevated on and off. Also, I've been on vitamin D for about a year now and feel no difference. My symptoms are extreme tiredness! All I wanna do i sleep. Black dot in the middle of my vision and other floaters, flashing lights. Constant twitching on my top and bottom eyelids..sometimes in the corner of my eyes. Ringing ears and muffled hearing. I have a hard time swallowing..like my throat muscles are too weak to push my food down normally. I constantly feel like I have a lump in my throat. I've felt twitching inside the front of my throat. I thought it was my thyroid but I've had MRI on my throat and apparently it's fine and thyroid blood levels. Numbing sensations in my face and scalp, the back of my neck. I feel like it's in my brain too. I've felt the right side of my brain jolt or something, scraping sensations and other weird unexplainable sensations. Bad headaches. All four limbs get numbness but my left foot is almost all the time and it goes up to my knee. Vibrations in my chest. Elevated heart rate. Sharp pains in my fingers. No sex drive. I feel like I have sore throats all the time too. And severe dry eye. Muscle spasms all over. I feel like my brain is slow.. I stumble on words and pronounce them wrong or can't get the word out. I'm forgetful all time. Swollen painful lymph nodes that come and go. Mostly in my neck and along my jaw. Frequent urination and sometimes I can't hold it or very little pee comes out. I'm not sure if all these are symptoms of MS but I've seen quite a few Drs. So far and been to emergency rooms for all my strange symptoms. They can't seem to find anything. Last time I went to the E.R they sent 60 different blood tests and have ruled out about 70/80 percent of diseases etc. Idk what to do. I feel like I'm crazy at this point and never gonna get a diagnosis. 😭😭😭 Does anyone else have any of these symptoms? Or a suggestion on what it can be?
I haven’t been diagnosed..but I’ve suspected something was wrong..I went to the er about 4 months ago for severe dizziness and they said it was vertigo. at the time I didn’t really suspect anything.. or know much about ms but I’m starting to realize i have a lot of the symptoms as well , listening to people that are diagnosed tell their story is like I’m listening to myself, the symptoms are so similar.. lately my vision is getting much worse double vision, floaters, flashes of light. numbness and tingling, feelings of heat on my skin. Memory loss (which is very noticeable bc my memory used to be pretty good)extreme fatigue, balance issues, weird sensations on my body like feeling water go down my legs. And sometimes I get a tight feeling around my chest like I’m being squeezed. I also have eye twitching and ear ringing. And my throat will have a vibrating feeling along with the top of my head,my fingers will lock up often & a hand tremor. My symptoms are getting worse so I’m gonna try to see a neurologist soon.. just know you aren’t alone I definitely understand the feelings that you are experiencing.
Check for pots
@@kristispece1678 how are u now
Yes you've just described me. I'm not diagnosed yet but under investigation with numerous consultants and emergency hospital visits due to temporary paralysis. I'm thinking MS or Sjogrens, Venus Williams has it and the symptoms are similar
Check for Myasthenia gravies or dysautonomia.
love you girl! I just wish I could see your face express more.... you're too beautiful for Botox ;)
Thank you 😂 I appreciate the feedback x
Every group or person I hear talking about MS seems to have symptoms that are relatively mild compared to my daughter and can still live normal lives. I can’t find anything for someone like her … that has tremors in both hands so can’t eat or do makeup or clasp her bra etc, and trouble walking and standing and bipolar type behavior that is difficult for the one parent caring for her as an adult to deal with … I understand that living with MS is difficult and sad but no one addresses how someone fully caring for someone with MS is doing. We are invisible robots that never need rest or relief apparently? 😕
Please look into natural ways to detox your daughter....it sounds like she has something(s) building up causing issues. It could be slowly from childhood, some exposure once or twice, food or drinks, or cosmetics or body care products....toys even. There are things that you can do to help and heal yourselves!
Thank you for the bottom of my heart for this video
You’re so welcome ❤️
Thank you for sharing
You’re welcome, thanks for watching
Hi everyone! Great video , thanks this is very informative. I am a clinical neuropsychologist with hospital practice. I don't like when people say MS is just a neurogenerative disease and that there is no cure, because imagine, you re there on a doctor seat receiving this news that impacts mental health and the whole treatment , that moment alone could destroy this person's future. And families are impacted as well. Today's reality is not just that, treatments are changing the course of MS and researches might bring the cure. INSTEAD ONE COULD SAY: It is a cronic disease that requires shared responsibilities and the cure has not YET been found but, in fact there are lots of ways to control MS that are helping people to live a much better life than decades ago. Reasons: 1- Nobody has total control of life, so everyone is at risk: fact. There is no need to create anxiety over the future. The need is to trust a good neurologist and to change into a healthier lifestyle. 2- Everyone goes through a neurodegenerative stage in life, actually it is part go the aging process. 3-There is good control of the disease, so concentrate on that. 4-Also concentrate on self-care, good exercise practise, have lots of friends as we all have a social brain that requires social connections. 5- Trust your neurologist, talk your doubts over, be the master of your brain health and share responsibilities with the ones you love and trust. 6-Be kind on you first.
Its funny when moneys involved then only then u get the correct mri results, shows the laziness of the hospital
I loose my eyesight too, and ive been given an mri of the head and it came ba k normal, but ive been getting tingling all over body
Very informative
I was homeless for awhile unable to get help. No one wants to help a grown man that looks healthy. I became homeless because of the MS and everyone said I was a liar. I lost everything I slept in gutters. I wanted to work but had no energy could not see well out of one of my eyes. Could not feel my legs under my knees. A nightmare try standing in a line with bad legs and MS fatigue f I r two hours for food. And told if you step out of line you need to go back to the end. Dx.d 2002 now I am 50 and am no where I should be in life because people do not like a healthy looking man trying to pull one over on the system. Then of course it's not fatigue your just depresses yes they call you nuts before dx a nightmare. To this day no one has ever helped me. But that's life
I was treated like a drunk a drug addicted bum. I was treated like I was just lazy lost everything. Years later I had a doctor tell me it might be something else years later. I was called a liar for a decade. Blind in one eye fatigue double vision. Finally got a MRI oh by the way for the last decade you were not lying its MS. Thank you veterans administration..... mavinclad young lady
True to a point,in my case I dont drink but walk like one I was mocked as being lazy Had a mri done but not diagnosed properly ....not given any meds .... Slow progression of symptoms showed more abnormalities like vertigo,fatigue headaches Most family n friends isolate u n u feel alone ...no help until someone does help u but they will also get mocked at cos they helping u....
@@shireenramnarain4005 you find out people are animals. i am telling you i went without food for days on end no heat no electric in the moddle of wonter in upstate ny. i tought i was dying. the hate.... i did not drink or take drugs even my parents and family looked the other way when they knew i had no food. as if trying to teach me a lesson. it was a nightmare for many years
@@ATL_Transparency_News i also feel like its a nightmare that i cannot wake up from People dont understand what u going thro Yes u right they r animals, no human qualities whatsoever.... I have helped others when they were sick ,(close families ,husband,also with an autoimmune condition ,but he has recovered cos HE earns the money n thinks he can get the med treatment )while i had symptoms of ms (,undiagnosed)but when they knew i was sick they kinda abandoned me ....then lucky my son 25yrs (also with an autoimmune condition )took me to a doc n diagnosed me with ms n i had proper meds ....but very expensive.... Many misunderstand n mock u Its a hard life....i feel sorry for my daughter 17yrs (also with a different autoimmune condition) n my son ....for they r also mocked at.....only forced help from father who threatens to leave us...
@@shireenramnarain4005 it isa shame it really is. you see people for what they are. it is insane to see you have no value in their eyes. some of the abuse i endured i cannot even write about. the things i had to do for food and to have heat i had to shut my brain off and go on auto pilot pretend it wasnt me but it was. people love to abuse people when they are weak.
@@ATL_Transparency_News true
Please keep up these videos, they're very helpful!!!
Thank you for this video. It is quite exceptional. I was diagnosed two days ago at age 47. Best from Germany
You are very welcome. I’m glad it was helpful and I hope you’re doing well x
Thank you very much for this video. I'm almost 47 and was diagnosed a couple of days ago. My symptoms are dizziness, numbness and pins and needles in my right hand and arm, painful shoulder....the dizziness lasted for weeks and was just awful. I found good doctors and am looking positively into the future. It has still been a difficult pill to swallow as you say... videos like yours are very helpful. We are not alone! And that's such a good feeling! Will watch your other videos now. Thank you. Best from Hamburg, Germany (and by the way: your botox looks great)
That was very powerful and amazing. Just curious,since your diagnosis have you heard of any family members with it? I know you did say that there wasn't a family history of MS but that was in 2019. In our family my sister niece and three other family members (including a mother and daughter) have it that we know of - all female. Good luck I think that you are fabulous : )
❤️🙏
You be ok you are Beyuty ❤️
You inspired me though I have no MS but another one. lupus. You are beautiful, I love your videos. Without the background music, it will be easier to hear you, it’s not easy to process two sounds at one time for some people like me.
You are so welcome and thank you for the feedback, which I will bear in mind! I hope you’re doing well x