Відео

Thank you so much for sharing 💖🫶⭐🙏

I just found your channel tonight. It was recommended to me as I am always searching for FND videos. I was diagnosed last spring, and luckily I did not have to go through additional testing to rule out other possibilities. My FND presents itself with body and head shaking which is really tiring and it also affects my vision, and balance and my ability to walk. I have also been fighting Fibromyalgia since 1998 and arthritis for a long time now. Last year I was diagnosed with breast cancer and the radiation whooped me and the shaking began then. I’m so sorry for all you are going through it’s a lot for such a young person to deal with. I am enjoying your videos I’m always trying to learn how other people deal with their illness. A big issue for me is family gatherings and the noise levels. Omg my body is so sensitive I feel overwhelmed and it brings out tinitis and my body shakes really badly. I then get very self aware and that just gets me frustrated. I joke that I am having a bobble head day and it’s draining. I cannot imagine the paralysis and seizures you have to deal with. Stay well or as well as you can possibly feel!

Hi there from the UK. i'm 34f and have been suffering since jan 2023 with slurring of my words (mainly concerning the letter 'L' or 'W') prior to this, my communication have been very articulate and strong in nature. Bit of context, i have been taking metrogel {metronidazole} for 5 years for my rosacea. The past few years have been incredibly stressful with bailiffs issues {for my mum} and issues at work, with friends and partners. I DID get bullied quite a bit as a child too. I dance and weight train, eat very clean {as I have sickness/heart phobia} but this slurring just will not go. My doctor claims it's just anxiety, or lack of confidence as my self esteem is pretty low {despite my outwood persona being very confident and bright} I just feel like i am being fobbed off though, and whenever i realise my speech going off, i panic as its just such an odd thing, not being able to correct yourself, but knowing you haven't pronounced it correctly, etc. I have no other issues, no pain, etc. I have suffered the odd tingling in my ring finger once or twice, but it most certainly isn't a weekly occurrence. Any opinions? Sorry for the sheer amount of words, i felt it was necessary to include!x

Thank you so much for sharing your experience.

❤❤❤

Lost my mum last year to severe ms i have fybromyalgia elements fnd

I could be your twin, but I’m older! I have a laundry list of chronic illnesses and the same ones as you. I’m also on opiates, have had ketamine and a bunch of other medications. Have you considered that you have dysautonomia? It would explain many of your problems. Mine was triggered by an mnra vax. I also have CPTSD.

Once born, you are on the path to death. The pace of that depends on genetics, lifestyle choices, disease and chance? Your brain is telling you things that are not true or misinterpreting signals. You just need to let the thoughts and feelings that your brain generates not control your destiny. This is not easy but possible. Trying to understand all the thoughts and feelings is going to make you function worse. Some of this is not easy to hear but until you take a deep breath and do it differently or the outcomes will not change. There is no "it"...

Hope your ok 😊 The struggle is real with this disorder

Try listen to ruqya

Of you keep sayimg in your pain people get sick of it so i just talk to Allah

I have lum on my skull it's sore ..I have fnd

You are so meaningful.

I don't mind AT ALL if your video was long lol😁I'm newly diagnosed and starting to accept that I have FNS, on top of CPTSD from an abusive Childhood, Fam Essential Tremors and almost all the symptoms of Parkinson's and I am desperate for any Info on, Experience with & tips & advice for living with FND... So I am SO GRATEFUL to you for sharing your Videos... Bring it on Sister😀🥹💝sending you healing energy and prayers from 🇨🇦

Do you have hypomobility

Precision Massage Clinic is Now Open in Lafayette, IN! I'm Sarah Trueb, CMT. I am a Medical Massage / Manual Therapist. I am on a mission to help people with FND! I have been dealing with FND myself this past year and feeling like things are getting back to normal. I felt like Mental Health & PT/OT/Speech was a joke... never enough and I feel like I wish I could clone myself. I need PT that involved touch. Not just neuromuscular type exercise. Anyways, I am in Lafayette, IN. I feel like this disorder is because we so anxious, had to stay-home, and boom its over... expected get back to life... like normal. So it seems like the new TREND of 2023! I can't get disability benefits, attorneys won'y take my case because of the complexity of this disorder, I look visibly better now, my support can't afford to help financially, and etc.

I have dealt with Chronic Fatigue and Fibromyalgia since 1997, but today I was diagnosed with FND, I’ve never heard of this before today. The neurologist was sweet but very business like. She proceeded to tell me what specialists could possibly help me, but could not refer me to anyone. ( I live in a city with two very large hospitals so there are no shortages of specialties). She gave me a handout giving me details on FND and another with 3 websites I could go on to better understand the symptoms of FND. She then told me that a CBT specialist could help me. She also told me to search out Physical Therapy, but to make sure that they were knowledgeable about FND. She ended our conversation with it will be difficult to find but they are out there. Thanks to UA-cam I found you and several other channels that gave me a better understanding of what is going on with my body. I feel completely overwhelmed with having to look for my own specialist. I’m not a young chick, and this does not come easy for me. Btw… I learned something from you that I had not found in any other channels, and it was sort of a relief to hear and that is the sensitivity to sounds, omg I sometimes have to put my hands over my ears. It is so bothersome to hear certain sounds. So glad I found your channel.

I have AD…..if you had Addison’s disease , you’d not be able to keep weight ON , because your body would not be making cortisol …. And you’d be at death’s door .

Not trying to “diagnose” you, but your sudden paralysis symptoms sound very much like a one of the ion channelopathies . If you see a good neurologist , they ( should have ) been able to rule this out, but obviously have to have a very high index of suspicion . Google the inherited channelopthies such as HKPP ( hypokalemic periodic paralysis, thyrotoxic periodic paralysis , etc ) . See what you think . Far more likely to be one of these, rather than an adverse reaction to zofran… especially with you saying you’ve had some electrolyte problems on labs. These most likely affect the potassium, sodium, and/ or calcium channels . Again , not trying to diagnose you, just suspicious based on many symptoms you described .

Where do you live? I am in Iowa and will be 3 years in August with my FND. Have you tried Neurological Biofeedback? That has helped me with my NES.

Thank you for sharing - this is really valuable information. Sending light and love for your continued healing journey.

Thank you so much for this video. I was recently diagnosed with FND/FMD. I believe it was beginning to show itself back in 2013 but never disabling. No one could figure out what was wrong so I just went about my life. That was until Dec. 2020, I had some right leg weakness that had been around for about a month. I was waiting to be seen at the Spine Center. I was in my kitchen doing little foot exercises and all of a sudden I started feeling shaky and this wave of heaviness washed over me from head to toe. I went to go look for help and realized I couldn’t lift my feet off the ground so I shuffled my way to the door. I went to call for my mom and my voice sounded shaken and strained. I had trouble getting some of my words out. It’s like I could see them in my mind but couldn’t get them out of my mouth. She helped me over to the couch to sit down. Once I sat I couldn’t not get back up. I couldn’t stand or walk. I was shocked in disbelief I thought maybe it’s something to do with my back. I thought maybe I just needed to rest. I literally waited until the next morning and I still couldn’t stand or walk. Once at the hospital, they thought I had a stroke. My legs felt like they weighed a thousand pounds when I tried lifting them. They were ice cold. If someone told me I didn’t have legs anymore I would have believed them if I didn’t see them in front of my eyes. While in the hospital I had many many tests. My symptoms began evolving and the weakness was now affecting my arms, my throat and basically all of my muscles. I developed chronic diaphragm spasms which sounded like hiccups but only one at a time. I had 10-50 a day for over 3 years. The list of symptoms is honestly too long to list. My life has been forever changed. Luckily I have regained enough strength to stand up and shuffle around like a snail. So for 3 years now I have been left with extreme muscle weakness. I fear that my strength will never come back completely. I think I will have to be in physical therapy for the rest of my life. I genuinely appreciate your willingness to share your experience. Wishing you all the best my FND friend.

Hey im alijah in the USA and think your great. Im 24 and have FND also and other conditions, im also isolated at home and learning to cope and adapt to chronic illness and disability. Your videos helped me alot would love to see you keep making them, i wish the best to you and believe we can make it just gotta keep swimming.💜🤗

Sending you giant hugs!!!

Sorry you are experiencing this..I have POTS too and fludrocortisone is the only thing that ( for me) is as close to a remedy as there is ...without it I become symptomatic again . I hope you feel better.

Very interesting discussion. Loved it. Where in Canada are you?

I'm an occupational therapist with POTS...thanks for being brave to share your story, it's always helpful to hear from others with it 💝

Do you have an Instagram page?

Keep up the work

Amen friend!! You're an incredible person fighting one hell of a battle. I know alot of this story already but I am honored to hear more about it. Will watch all your videos and support you in any way I can! I love you friend!!! So much!!! Proud of you for sharing