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Bionews
United States
Приєднався 9 жов 2015
Bionews is a digital health solutions company dedicated to empowering more than 50 rare disease communities with trusted information, news, and connections. We foster a space where hope thrives and patients' voices are heard.
bionews.com
bionews.com
Meet our ACTRIMS 2023 correspondents
Senior science writer Marisa Horak, MS, and science writer Lindsey Shapiro, PhD, talk about how they came to BioNews and Multiple Sclerosis News Today, why conferences like ACTRIMS 2023 are important, and the highlights of this year’s forum.
#ACTRIMS2023, #MSNewsToday, #BioNews
#ACTRIMS2023, #MSNewsToday, #BioNews
Переглядів: 104
Відео
Interview with MS advocate Tyler Campbell at ACTRIMS 2023
Переглядів 145Рік тому
As part of its comprehensive coverage of #actrims2023, Multiple Sclerosis News Today interviewed MS advocate and patient Tyler Campbell to discuss his MS experience and the premiere of the documentary "MS in Black and African Americans" that premiered at the conference. Listen as he describes his own MS diagnosis journey and highlights the health inequities among Black people with MS and the im...
Interview with MS specialist Mitzi Joi Williams, MD, at ACTRIMS 2023
Переглядів 122Рік тому
Multiple Sclerosis News Today interviewed Mitzi Joi Williams, founding medical director of Joi Life Wellness, at #actrims2023 to discuss health inequities among Black people with MS and the documentary “"MS in Black and African Americans” that premiered at the conference. Listen as she discusses progress that has been made in addressing racial disparities in MS care and research and what still ...
#whyrare - Rare Disease Day 2023, BioNews Inc.
Переглядів 297Рік тому
BioNews Inc.'s #whyrare goes beyond Rare Disease Day in February. More than 60% of our BioNews contributors are living with or are part of the rare disease communities we serve. Rare disease awareness is carried with us in everything we produce as a company. We are proud to share our companywide video highlighting why rare disease awareness matters to our employees and contributors.
"A Window Into Rare" - Rare Disease Day Panel Discussion
Переглядів 3142 роки тому
What does it really mean to be rare? On Rare Disease Day, we held a virtual panel discussion, A Window Into Rare, hosted by patient advocate Liza Bernstein. Columnists Paris Dancy, Michelle Gonzaba, Claire Richmond, and Sherry Toh joined Liza to chat about awareness, advocacy, mental health, empowerment and more. They also answered questions during the live Q&A. You can now watch this unmissabl...
"A Window Into Rare" - BioNews Presents a Rare Disease Day Panel Discussion
Переглядів 582 роки тому
What does it really mean to be rare? #bionews #wearerare #awindowintorare #rarediseaseday
We Are Rare. We Are BioNews.
Переглядів 5303 роки тому
www.bionews.com Here at Bionews we know rare. Rare is not a disadvantage, but what makes us unique. We are a safe space for anyone affected by rare diseases to form meaningful and impactful relationships. We are a trustworthy source of information to help educate, engage, and champion the patient voice.
#ACTRIMS2020 - Jenny Tauchman from the National Multiple Sclerosis Society Discusses "Pathways"
Переглядів 544 роки тому
#ACTRIMS2020 - Jenny Tauchman from the National Multiple Sclerosis Society Discusses "Pathways"
#ACTRIMS2020 - Dr. Chitnis on The Importance of Social Networks and Impact on Disease Manifestation
Переглядів 1004 роки тому
#ACTRIMS2020 - Dr. Chitnis on The Importance of Social Networks and Impact on Disease Manifestation
#WhatMakesMeRare - Celebrating Rare Disease Day 2020
Переглядів 1,9 тис.4 роки тому
#WhatMakesMeRare - Celebrating Rare Disease Day 2020
#WODC2019 - Exclusive Interview with Ron Bartek (FARA)
Переглядів 1555 років тому
#WODC2019 - Exclusive Interview with Ron Bartek (FARA)
#WODC2019 - Exclusive Interview with Amanda Bok (EHC)
Переглядів 1875 років тому
#WODC2019 - Exclusive Interview with Amanda Bok (EHC)
#WODC2019 - Exclusive Interview with Dr. Anne Pariser (NIH)
Переглядів 1945 років тому
#WODC2019 - Exclusive Interview with Dr. Anne Pariser (NIH)
#WODC2019 - Exclusive Interview with Tim Boyd (NORD)
Переглядів 195 років тому
#WODC2019 - Exclusive Interview with Tim Boyd (NORD)
#WODC2019 - Exclusive Interview with Dr. Arndt Rolfs (Centogene)
Переглядів 3345 років тому
#WODC2019 - Exclusive Interview with Dr. Arndt Rolfs (Centogene)
#WODC2019 - Exclusive Interview with Debra Miller (CureDuchenne)
Переглядів 425 років тому
#WODC2019 - Exclusive Interview with Debra Miller (CureDuchenne)
#MSParis2017 - Exclusive Interview with Bruce Bebo
Переглядів 3337 років тому
#MSParis2017 - Exclusive Interview with Bruce Bebo
#MSParis2017 - Exclusive Interview with Dr. Robert Zivadinov,
Переглядів 4627 років тому
#MSParis2017 - Exclusive Interview with Dr. Robert Zivadinov,
#MSParis2017 - Exclusive Interview with Dan Bar-Zohar
Переглядів 6447 років тому
#MSParis2017 - Exclusive Interview with Dan Bar-Zohar
#MSParis2017 - Exclusive Interview with Dr. Hideki Garren (Genentech)
Переглядів 4527 років тому
#MSParis2017 - Exclusive Interview with Dr. Hideki Garren (Genentech)
#MSParis2017 - Exclusive Interview with Dr. Aaron Boster
Переглядів 2,1 тис.7 років тому
#MSParis2017 - Exclusive Interview with Dr. Aaron Boster
#MSParis2017 - Exclusive Interview with Dr. Frédéric Sedel
Переглядів 6997 років тому
#MSParis2017 - Exclusive Interview with Dr. Frédéric Sedel
#MSParis2017 - Exclusive Interview with Dr. Rick Rudick
Переглядів 1847 років тому
#MSParis2017 - Exclusive Interview with Dr. Rick Rudick
#MSParis2017 - Exclusive Interview with Professor Gavin Giovannoni
Переглядів 1,6 тис.7 років тому
#MSParis2017 - Exclusive Interview with Professor Gavin Giovannoni
#IARC2017 - Exclusive Interview with Ronald Bartek from FARA (FA News)
Переглядів 227 років тому
#IARC2017 - Exclusive Interview with Ronald Bartek from FARA (FA News)
#IARC2017 - Exclusive Interview with Kyle Bryant (FA News)
Переглядів 2187 років тому
#IARC2017 - Exclusive Interview with Kyle Bryant (FA News)
#IARC2017 - Exclusive Interview with Dr Colin Meyer (FA News)
Переглядів 3497 років тому
#IARC2017 - Exclusive Interview with Dr Colin Meyer (FA News)
#IARC2017 - Exclusive Interview with Dr Mark Payne (FA News)
Переглядів 1617 років тому
#IARC2017 - Exclusive Interview with Dr Mark Payne (FA News)
#IARC2017 - Exclusive Interview with Dr Hélène Puccio (FA News)
Переглядів 4907 років тому
#IARC2017 - Exclusive Interview with Dr Hélène Puccio (FA News)
My brother from another mother my 2 cousins (brothers) had your same diagnosis years and years ago back in the 70s but they have never let that keep them from living life to the fullest, living in the love of God in Jesus Christ and believing he has a plan for this situation and how he wants to use you and your testimony 😅 Jesus won't give up on you even when you do on yourself and doubt him and his process with your heart ❤️🙏 praying for you my friend 😜
Keep staying positive and fighting the good fight ❤
We will walk together
I'm looking to contact Marisa about an article she had published recently, regarding angioedema genetic variants (that I may have). I can't seem to find any real contact information other than a dead linked in account. I'm interested in taking part in a study somehow if available. LMK
The subject of senior living-like my dad at silvergaterr-and how it connects to MS in the Black community was also covered in the debate. People with MS experience changing demands and problems as they become older, which can be especially challenging for those residing in elder care homes. Williams emphasized the significance of fostering an environment that is welcoming and encouraging for Black seniors with MS, where their particular needs are recognized and met.
Real talk, thank you, Tyler, for sharing your experience with MS! #realstuff #MSawareness 🧡
A true honor and privilege to serve!!!!🙏🏾🙏🏾🙏🏾🙏🏾
How many Filipipino-Americans have ms?
Thank you so much for translating all the scientific info on MS into plain English! Society With MS is a patient-led nonprofit with 3500 members in our research study group. We discuss all the articles from MSNewsToday, and avidly followed your live reports on Twitter during Actrims2023. Looking forward to your continued coverage.
💛💛💛💛💛💛💛
Nice dog but why he doesn't fold the cloth on the cupboard and put them in the closet?
I am a adult entertainment cam model Mindys husband Scott previously hired me and she has been stalking, harassing me and my family because of him, I am a young black girl suffering from mental illness don't know what to do??????
So exciting as I was able to fully defeat my long term genital herpes virus with the herbal remedy i ordered from Dr. kwaloe on you tube though i didn't even have to change my diet while using his med.
I just happened to come across this video! I have a long list of several rare diseases! Not just one or 2 but so many. I’m all pretty newly diagnosed and still working on diagnosis too. What all things do you help with and how can I be a part of your community? I don’t understand anything about getting help outside of the Drs or medical field and I don’t quite understand organization or things that are set up for this and what I can expect to get out of them. I did find an organization that has support groups and it has been a blessing but other than that what else can I get from this or any like this? Thanks I just don’t even understand how there started. I do know there is a cancer organization that helps with travel experiences places to stay for appointments and has cards but that is all I know about that. It this anything like that? I can see it is awareness and education and I appreciate it! Thanks again
Claire...you mention medical PTSD. I wanted to jump up and scream, "YES, YES, YES!!!!" This is an idea that is just beginning to gain some traction, but we need to educate health care providers on how to recognize it in patients, how to manage patients with mPTSD, and how to NOT create it or exacerbate it in their patients.
Absolutely! A triggering appt or medical situation can massively impact a patient, and how much does the doc even realize it? I will continue to raise awareness about this important issue! Thanks for watching, Brenda.
@@CulversGardenCenter I am founder and co-moderator of an mPTSD support group on FB. We have members who, even in immediately life-threatening situations, stop to think about whether they want to get medical help or not, because they have been so traumatized by their past medical encounters. This is just unreal!
@@brendadenzler7173 this is me. I have serious problems and am afraid to tell dr I get seen because of how I was treated by so many in past. I also have a possible myasthenia Gravis and several other connective tissue disease and it causes systemic problems and other diagnosis. It took me 15 years to get to these diagnosis. So it it tuff!
@@CulversGardenCenter I would like to take to you please..I'm suffering and because of this virus that people don't believe or take seriously he in Georgia..I'm thanking I have since my 20 know lesion to you. Thanking for sharing. I have been doctor and emergency and they do no test and very look .. very painful and driving me crazy and people treat as it nothing.
How many Filipipino-Americans have ms,,,?.
Such a good boy, really nice focus too!
Is he in the final stage or not?
Empathetic thought leader in the space of MS! The analogies and stories tie in so well. You can tell he really cares about the quality of life for his patients!
#MS truths as its so corrupted .Dr. George Ebers, one of the world's top multiple sclerosis researchers, exposes the upsetting relationship between the pharmaceutical industry, neurologists and MS charities. ua-cam.com/video/i0m_isndqc0/v-deo.html The system is all broken everywhere in the UK concerning #MS
#MS truths as its so corrupted .Dr. George Ebers, one of the world's top multiple sclerosis researchers, exposes the upsetting relationship between the pharmaceutical industry, neurologists and MS charities. ua-cam.com/video/i0m_isndqc0/v-deo.html The system is all broken everywhere in the UK concerning #MS
#MS truths as its so corrupted .Dr. George Ebers, one of the world's top multiple sclerosis researchers, exposes the upsetting relationship between the pharmaceutical industry, neurologists and MS charities. ua-cam.com/video/i0m_isndqc0/v-deo.html The system is all broken everywhere in the UK concerning #MS
#MS truths as its so corrupted .Dr. George Ebers, one of the world's top multiple sclerosis researchers, exposes the upsetting relationship between the pharmaceutical industry, neurologists and MS charities. ua-cam.com/video/i0m_isndqc0/v-deo.html The system is all broken everywhere in the UK concerning #MS
Love Dr Boster he's such a great man. He loves his patients and gives information on his channel that is nothing less but amazing!
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